Amsterdam Public Health - Personalized Medicine

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2020

A nurse-led self-management support intervention for patients and informal caregivers facing incurable cancer: A feasibility study from the perspective of nurses

Slev, V. N., Molenkamp, C. M., Eeltink, C. M., Roeline W Pasman, H., Verdonck-de Leeuw, I. M., Francke, A. L. & van Uden-Kraan, C. F., 1 Apr 2020, In : European Journal of Oncology Nursing. 45, 101716.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Development of a prediction model to target screening for high blood pressure in children

Hamoen, M., Welten, M., Nieboer, D., Bai, G., Heymans, M. W., Twisk, J. W. R., Raat, H., Vergouwe, Y., Wijga, A. H. & de Kroon, M. L. A., 2020, In : Preventive Medicine. 132, 105997.

Research output: Contribution to journalArticleAcademicpeer-review

DPD testing before treatment with fluoropyrimidines in the Amsterdam UMCs: An evaluation of current pharmacogenetic practice

Martens, F. K., Huntjens, D. W., Rigter, T., Bartels, M., Bet, P. M. & Cornel, M. C., 1 Jan 2020, In : Frontiers in Pharmacology. 10, 1609.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access
Open Access

ESHG PPPC Comments on postmortem use of genetic data for research purposes

Fellmann, F., Rial-Sebbag, E., Patch, C., Hentze, S., Stefandottir, V., Mendes, A., van El, C. G., Cornel, M., Forzano, F., Clarke, A., Cordier, C., Cornel, M., van El, C. G., Howard, H., Kayserili, H., Melegh, B., Perola, M., Radojkovic, D. & de Wert, G., Feb 2020, In : European Journal of Human Genetics. 28, 2, p. 144-146 3 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Healthcare utilization and productivity loss in glioma patients and family caregivers: the impact of treatable psychological symptoms

Boele, F. W., Meads, D., Jansen, F., Verdonck-de Leeuw, I. M., Heimans, J. J., Reijneveld, J. C., Short, S. C. & Klein, M., 14 Mar 2020, In : Journal of Neuro-Oncology.

Research output: Contribution to journalArticleAcademicpeer-review

Health-related and cancer-related Internet use by patients treated with total laryngectomy

van Uden-Kraan, C. F., Jansen, F., Lissenberg-Witte, B. I., Eerenstein, S. E. J., Leemans, C. R. & Verdonck-de Leeuw, I. M., Jan 2020, In : Supportive Care in Cancer. 28, 1, p. 131-140 10 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

How to Integrate Personalized Medicine into Prevention? Recommendations from the Personalized Prevention of Chronic Diseases (PRECeDI) Consortium

Boccia, S., Pastorino, R., Ricciardi, W., Ádány, R. Z., Barnhoorn, F., Boffetta, P., Cornel, M. C., de Vito, C., Gray, M., Jani, A., Lang, M., Roldan, J., Rosso, A., Sánchez, J. M., van Dujin, C. M., van el, C. G., Villari, P. & Zawati, MN. H., 1 Feb 2020, In : Public Health Genomics. 22, 5-6, p. 208-214 7 p.

Research output: Contribution to journalArticleAcademicpeer-review

Implementation of Pharmacogenetics in Primary Care: A Multi-Stakeholder Perspective

Rigter, T., Jansen, M. E., Groot, J. M. D., Janssen, S. W. J., Rodenburg, W. & Cornel, M. C., 31 Jan 2020, In : Frontiers in Genetics. 11, 10.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Implementation of Pharmacogenetics in Primary Care: A Multi-Stakeholder Perspective

Rigter, T., Jansen, M. E., de Groot, J. M., Janssen, S. W. J., Rodenburg, W. & Cornel, M. C., 2020, In : Frontiers in Genetics. 11, p. 10

Research output: Contribution to journalArticleAcademicpeer-review

International perspectives on the implementation of reproductive carrier screening

Delatycki, M. B., Alkuraya, F., Archibald, A., Castellani, C., Cornel, M., Grody, W. W., Henneman, L., Ioannides, A. S., Kirk, E., Laing, N., Lucassen, A., Massie, J., Schuurmans, J., Thong, M. K., van Langen, I. & Zlotogora, J., 1 Feb 2020, In : Prenatal Diagnosis. 40, 3, p. 301-310 10 p.

Research output: Contribution to journalArticleAcademicpeer-review

Performance of methods to conduct mediation analysis with time-to-event outcomes

Burgos Ochoa, L., Rijnhart, J. J. M., Penninx, B. W., Wardenaar, K. J., Twisk, J. W. R. & Heymans, M. W., 1 Feb 2020, In : Statistica Neerlandica. 74, 1, p. 72-91 20 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Systematic scoping review of the concept of 'genetic identity' and its relevance for germline modification

Goekoop, F. M., Van El, C. G., Widdershoven, G. A. M., Dzinalija, N., Cornel, M. C. & Evans, N., 1 Jan 2020, In : PLoS ONE. 15, 1, e0228263.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access
2019

A continuous juggle of invisible forces: How fatigued dialysis patients manage daily life

van der Borg, W. E., Verdonk, P., de Jong-Camerik, J. G. A., Schipper, K. & Abma, T. A., 6 Jun 2019, In : Journal of Health Psychology.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Adoption and implementation of a web-based self-management application “Oncokompas” in routine cancer care: a national pilot study

Matthijs de Wit, L., van Uden-Kraan, C. F., Lissenberg-Witte, B. I., Melissant, H. C., Fleuren, M. A. H., Cuijpers, P. & Verdonck-de Leeuw, I. M., 1 Aug 2019, In : Supportive Care in Cancer. 27, 8, p. 2911-2920

Research output: Contribution to journalArticleAcademicpeer-review

Advancing interdisciplinary research in head and neck cancer through a multicenter longitudinal prospective cohort study: The NETherlands QUality of life and BIomedical Cohort (NET-QUBIC) data warehouse and biobank

Verdonck-de Leeuw, I. M., Jansen, F., Brakenhoff, R. H., Langendijk, J. A., Takes, R., Terhaard, C. H. J., de Jong, R. J. B., Smit, J. H. & Leemans, C. R., 2019, In : BMC Cancer. 19, 1, 765.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

An empirical comparison of meta- and mega-analysis with data from the ENIGMA Obsessive-Compulsive Disorder working group

Boedhoe, P. S. W., Heymans, M. W., Schmaal, L., Abe, Y., Alonso, P., Ameis, S. H., Anticevic, A., Arnold, P. D., Batistuzzo, M. C., Benedetti, F., Beucke, J. C., Bollettini, I., Bose, A., Brem, S., Calvo, A., Calvo, R., Cheng, Y., Cho, K. L. K., Ciullo, V., Dallaspezia, S. & 46 others, Denys, D., Feusner, J. D., Fitzgerald, K. D., Fouches, J-P., Fridgeirsson, E. A., Gruner, P., Henna, G. L., Hibar, D. P., Hoexter, M. Q., Hu, H., Huyser, C., Jahanshad, N., James, A., Kathmann, N., Kaufmann, C., Koch, K., Kwon, J. S., Lazaro, L., Lochner, C., Marsh, R., Martinez-Zalacain, I., Mataix-Cols, D., Menchon, J. M., Minuzzi, L., Morer, A., Nakamae, T., Nakao, T., Narayanaswamy, J. C., van den Heuvel, O. A., Twisk, J. W. R., Nishida, S., Nurmi, E. L., Stein, D. J., Thompson, P. M., Yun, J-Y., Wang, Z., Walitza, S., Venkatasubramanian, G., van Wingen, G. A., Tolin, D. F., Szeszko, P. R., Stevens, M., Spalletta, G., Soriano-Mas, C., Soreni, N. & ENIGMA OCD Working Group, 8 Jan 2019, In : Frontiers in Neuroinformatics. 12

Research output: Contribution to journalArticleAcademicpeer-review

Assessment of Neurocognitive Impairment and Speech Functioning before Head and Neck Cancer Treatment

Piai, V., Prins, J. B., Verdonck-de Leeuw, I. M., Leemans, C. R., Terhaard, C. H. J., Langendijk, J. A., Baatenburg de Jong, R. J., Smit, J. H., Takes, R. P. & Kessels, R. P. C., 1 Mar 2019, In : JAMA Otolaryngology - Head and Neck Surgery. 145, 3, p. 251-257

Research output: Contribution to journalArticleAcademicpeer-review

Body changes after cancer: female cancer patients’ perceived social support and their perspective on care

Melissant, H. C., van Uden-Kraan, C. F., Lissenberg-Witte, B. I. & Verdonck-de Leeuw, I. M., 1 Nov 2019, In : Supportive Care in Cancer. 27, 11, p. 4299-4306 8 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Childhood prediction models for hypertension later in life: a systematic review

Hamoen, M., de Kroon, M. L. A., Welten, M., Raat, H., Twisk, J. W. R., Heymans, M. W. & Vergouwe, Y., 1 May 2019, In : Journal of Hypertension. 37, 5, p. 865-877

Research output: Contribution to journalArticleAcademicpeer-review

Commercieel aanbod van DNA-tests: Ruim baan voor vrije markt en zelfbeschikking?

Translated title of the contribution: Commercial offer of DNA-tests: Allow freedom for the market and autonomy?Cornel, MC., Ploem, C. & Gevers, J. K. M., 27 Sep 2019, In : Nederlands Juristenblad. 32, p. 2364-2371 8 p.

Research output: Contribution to journalArticleProfessional

Development and Psychometric Evaluation of an Item Bank for Computerized Adaptive Testing of the EORTC Insomnia Dimension in Cancer Patients (EORTC CAT-SL)

Dirven, L., Petersen, M. A., Aaronson, N. K., Chie, W-C., Conroy, T., Costantini, A., Hammerlid, E., Velikova, G., Verdonck-de Leeuw, I. M., Young, T., Groenvold, M. & on behalf of the EORTC Quality of Life Group, 6 Dec 2019, In : Applied Research in Quality of Life.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Development and use of a flexible data harmonization platform to facilitate the harmonization of individual patient data for meta-analyses

Kalter, J., Sweegers, M. G., Verdonck-de Leeuw, I. M., Brug, J. & Buffart, L. M., 22 Mar 2019, In : BMC Research Notes. 12, 1, 164.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Development and validation of the Brabant Hip Fracture Score for 30-day and 1-year mortality

van de Ree, C. L. P., Gosens, T., van der Veen, A. H., Oosterbos, C. J. M., Heymans, M. W. & de Jongh, M. A. C., 2019, (Accepted/In press) In : Hip International.

Research output: Contribution to journalArticleAcademicpeer-review

Development of a clinical prediction model for the onset of functional decline in people aged 65-75 years: Pooled analysis of four European cohort studies

Jonkman, N. H., Colpo, M., Klenk, J., Todd, C., Hoekstra, T., del Panta, V., Rapp, K., van Schoor, N. M., Bandinelli, S., Heymans, M. W., Mauger, D., Cattelani, L., Denkinger, M. D., Rothenbacher, D., Helbostad, J. L., Vereijken, B., Maier, A. B. & Pijnappels, M., 27 Jun 2019, In : BMC Geriatrics. 19, 1, 179.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Development of Prediction Model for the Prognosis of Sick Leave Due to Low Back Pain

Bosman, L. C., Twisk, J. W. R., Geraedts, A. S. & Heymans, M. W., 1 Dec 2019, In : Journal of Occupational and Environmental Medicine. 61, 12, p. 1065-1071 7 p.

Research output: Contribution to journalArticleAcademicpeer-review

Development of Prediction Models for Sick Leave Due to Musculoskeletal Disorders

Bosman, L. C., Roelen, C. A. M., Twisk, J. W. R., Eekhout, I. & Heymans, M. W., 15 Sep 2019, In : Journal of Occupational Rehabilitation. 29, 3, p. 617-624 8 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Direct-to-consumer carrier screening for cystic fibrosis via a hospital website: a 6-year evaluation

Holtkamp, K. C. A., Henneman, L., Gille, J. J. P., Meijers-Heijboer, H., Cornel, M. C. & Lakeman, P., 4 Apr 2019, In : Journal of Community Genetics. 10, 2, p. 249-257

Research output: Contribution to journalArticleAcademicpeer-review

Effectiveness of dorsal root ganglion stimulation and dorsal column spinal cord stimulation in a model of experimental painful diabetic polyneuropathy

Koetsier, E., Franken, G., Debets, J., van Kuijk, S. M. J., Perez, R. S. G. M., Linderoth, B., Joosten, E. A. J. & Maino, P., 1 Mar 2019, In : CNS Neuroscience and Therapeutics. 25, 3, p. 367-374 8 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Effect of Partial Sick Leave on Sick Leave Duration in Employees with Musculoskeletal Disorders

Bosman, L. C., Twisk, J. W. R., Geraedts, A. S. & Heymans, M. W., 1 Jan 2019, In : Journal of Occupational Rehabilitation.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death

Fellmann, F., van El, C. G., Charron, P., Michaud, K., Howard, H. C., Boers, S. N., Clarke, A. J., Duguet, A. M., Forzano, F., Kauferstein, S., Kayserili, H., Lucassen, A., Mendes, Á., Patch, C., Radojkovic, D., Rial-Sebbag, E., Sheppard, M. N., Tassé, A. M., Temel, S. G., Sajantila, A. & 4 others, Basso, C., Wilde, A. A. M., Cornel, M. C. & on behalf of European Society of Human Genetics, European Council of Legal Medicine, European Society of Cardiology working group on myocardial and pericardial diseases, European Reference Network for rare, low prevalence and complex diseases of the heart (ERN GUARD-Heart), Association for European Cardiovascular Pathology, 1 Dec 2019, In : European Journal of Human Genetics. 27, 12, p. 1763-1773

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Framingham score and work-related variables for predicting cardiovascular disease in the working population

Zwaard, A-J. V. D., Geraedts, A., Norder, G., Heymans, M. W. & Roelen, C. A. M., 2019, In : European Journal of Public Health. 29, 5, p. 832-837

Research output: Contribution to journalArticleAcademicpeer-review

Gender awareness in medicine: adaptation and validation of the Nijmegen Gender Awareness in Medicine Scale to the Portuguese population (N-GAMS)

Morais, R., Bernardes, S. F. & Verdonk, P., 25 Oct 2019, In : Advances in Health Sciences Education.

Research output: Contribution to journalArticleAcademicpeer-review

Genome-wide sequencing in acutely ill infants: genomic medicine's critical application?

Friedman, J. M., Bombard, Y., Cornel, M. C., Fernandez, C. V., Junker, A. K., Plon, S. E., Stark, Z., Knoppers, B. M. & Paediatric Task Team of the Global Alliance for Genomics and Health Regulatory and Ethics Work Stream, 1 Feb 2019, In : Genetics in Medicine. 21, 2, p. 498-504 7 p.

Research output: Contribution to journalArticleAcademicpeer-review

Het beloop van duizeligheid bij ouderen voorspellen

Stam, H., Maarsingh, O., Heymans, M., van Weert, H., van der Wouden, H. & van der Horst, H., 2019, In : Huisarts en Wetenschap. 62, 11, p. 36-38

Research output: Contribution to journalArticleAcademicpeer-review

Interventions to improve functioning, participation, and quality of life in children with visual impairment: a systematic review

Elsman, E. B. M., Al Baaj, M., van Rens, G. H. M. B., Sijbrandi, W., van den Broek, E. G. C., van der Aa, H. P. A., Schakel, W., Heymans, M. W., de Vries, R., Vervloed, M. P. J., Steenbergen, B. & van Nispen, R. M. A., 1 Jul 2019, In : Survey of ophthalmology. 64, 4, p. 512-557

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Introducing Decision Aids into Routine Prostate Cancer Care in The Netherlands: Implementation and Patient Evaluations from the Multi-regional JIPPA Initiative

Cuypers, M., Al-Itejawi, H. H. M., van Uden-Kraan, C. F., Stalmeier, P. F. M., Lamers, R. E. D., van Oort, I. M., Somford, D. M., van Moorselaar, R. J. A., Verdonck-de Leeuw, I. M., van de Poll-Franse, L. V., van Tol-Geerdink, J. J. & de Vries, M., 5 Jul 2019, In : Journal of Cancer Education.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Kiembaanmodificatie: een medisch ethisch perspectief op paren met een kinderwens

van Dijke, I. & van El, CG., 24 Jun 2019, In : Nederlandse Vereniging voor Bio-ethiek (NVBe). 26, 1, p. 5-7 2 p., Jaargang 26, nummer 1.

Research output: Contribution to journalArticleProfessional

Open Access
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Moving towards a cure in genetics: what is needed to bring somatic gene therapy to the clinic?

Cornel, M. C., Howard, H. C., Lim, D., Bonham, V. L. & Wartiovaara, K., 1 Mar 2019, In : European Journal of Human Genetics. 27, 3, p. 484-487 4 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Orofacial pain and its potential oral causes in older people with mild cognitive impairment or dementia

Delwel, S., Scherder, E. J. A., de Baat, C., Binnekade, T. T., van der Wouden, J. C., Hertogh, C. M. P. M., Maier, A. B., Perez, R. S. G. M. & Lobbezoo, F., 1 Jan 2019, In : Journal of Oral Rehabilitation. 46, 1, p. 23-32 10 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Over de overgang praat je niet als vrouw.

Verdonk, P., 11 May 2019, In : NRC Handelsblad.

Research output: Contribution to journalArticlePopular

Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., Kylänen, M., Oosterveld-Vlug, M. G., Pasman, H. R. W., Payne, S., Smets, T., Szczerbińska, K., Twisk, J. W. R., van der Steen, J. T. & on behalf of PACE, 1 Oct 2019, In : Palliative Medicine. 33, 9, p. 1176-1188 13 p.

Research output: Contribution to journalArticleAcademicpeer-review

Parental perspectives on retention and secondary use of neonatal dried bloodspots: A Dutch mixed methods study

Jansen, M. E., Van Den Bosch, L. J. M., Hendriks, M. J., Scheffer, M. M. J., Heijnen, M. L., Douglas, C. M. W. & Van El, C. G., 9 Jul 2019, In : BMC Pediatrics. 19, 1, 230.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Parenthood does not explain the gender difference in clinical position in academic medicine among Swedish, Dutch and Austrian physicians

Komlenac, N., Gustafsson Sendén, M., Verdonk, P., Hochleitner, M. & Siller, H., 1 Aug 2019, In : Advances in Health Sciences Education. 24, 3, p. 539-557 19 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Patients’ experiences of life review therapy combined with memory specificity training (LRT-MST) targeting cancer patients in palliative care

Kleijn, G., van Uden-Kraan, C. F., Bohlmeijer, E. T., Becker-Commissaris, A., Pronk, M., Willemsen, V., Cuijpers, P. & Verdonck-de Leeuw, I. M., 1 Sep 2019, In : Supportive Care in Cancer. 27, 9, p. 3311-3319 9 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Physical activity in patients with cancer: self-report versus accelerometer assessments

Douma, J. A. J., de Beaufort, M. B., Kampshoff, C. S., Persoon, S., Vermaire, J. A., Chinapaw, M. J., van Mechelen, W., Nollet, F., Kersten, M. J., Smit, J. H., Verdonck-de Leeuw, I. M., Altenburg, T. M. & Buffart, L. M., 1 Jan 2019, In : Supportive Care in Cancer.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

Polygenetische risicopredictie van veelvoorkomende ziekten: Van epidemiologie naar klinische toepassing

Translated title of the contribution: Polygenic risk prediction of common diseases: from epidemiology to clinical applicationJansen, P. R., Broeders, M. J. M., Cornel, M. C. & Meijers-Heijboer, H., 1 Jan 2019, In : Nederlands Tijdschrift voor Geneeskunde. 163, 40

Research output: Contribution to journalArticleProfessional