Lidewij Henneman

DR., (Principal Investigator)

Associate Professor, Clinical genetics
Associate Professor, Amsterdam Public Health - Quality of Care
Associate Professor, Amsterdam Reproduction and Development

Research output per year

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Personal profile

Research interests

Lidewij Henneman is co-Director of the Amsterdam Reproduction & Development research institute. Her research interest is in applications of new genetic technologies concerning pregnancy and birth, and the implications for individuals and society. Her research focuses mainly on the needs, preferences and decision-making of (potential) users. In particular in relation to preconception carrier screening for recessive diseases, prenatal screening, and expansion of newborn bloodspot screening. Applications of next generation sequencing for prenatal and postnatal diagnosis of children with a congenital condition also have her attention.

She has expertise in both qualitative and quantitative research methodologies to assess the views and experiences of (potential) users such as health care professionals, patients and wider society.

She is board member of the Dutch non-invasive prenatal test (NIPT) Consortium and thereby coordinates research on women’s perspectives on NIPT (TRIDENT studies). She won the EMGO Societal Impact Award 2016 (topic NIPT), and received the Dutch Public Health Award (Volksgezondheidsprijs) for her PhD thesis on Preconceptional cystic fibrosis carrier screening.

She (co-)published over 100 international articles (H-index 27) and supervised 13 PhD students/thesis.

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Research Output

131 Article
16 Meeting Abstract
9 Chapter
3 Review article
5 More

Do preferred risk formats lead to better understanding? A multicenter controlled trial on communicating familial breast cancer risks using different risk formats

Henneman, L., van Asperen, C. J., Oosterwijk, J. C., Menko, F. H., Claassen, L. & Timmermans, D. R. M., 1 Jan 2020, In : Patient Preference and Adherence. 14, p. 333-342 10 p.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access

International perspectives on the implementation of reproductive carrier screening

Delatycki, M. B., Alkuraya, F., Archibald, A., Castellani, C., Cornel, M., Grody, W. W., Henneman, L., Ioannides, A. S., Kirk, E., Laing, N., Lucassen, A., Massie, J., Schuurmans, J., Thong, M-K., van Langen, I. & Zlotogora, J., 1 Feb 2020, In : Prenatal Diagnosis. 40, 3, p. 301-310 10 p.

Research output: Contribution to journal › Review article › Academic › peer-review

Who ever heard of 16p11.2 deletion syndrome? Parents' perspectives on a susceptibility copy number variation syndrome

Kleinendorst, L., van den Heuvel, L. M., Henneman, L. & van Haelst, M. M., 15 May 2020, In : European Journal of Human Genetics.

Research output: Contribution to journal › Article › Academic › peer-review

Attitudes of the general population towards preconception expanded carrier screening for autosomal recessive disorders including inborn errors of metabolism

Nijmeijer, S. C. M., Conijn, T., Lakeman, P., Henneman, L., Wijburg, F. A. & Haverman, L., 1 Jan 2019, In : Molecular Genetics and Metabolism. 126, 1, p. 14-22 9 p.

Research output: Contribution to journal › Article › Academic › peer-review

Correction: The Gen-Equip Project: evaluation and impact of genetics e-learning resources for primary care in six European languages (Genetics in Medicine, (2019), 21, 3, (718-726), 10.1038/s41436-018-0132-3)

Jackson, L., O’Connor, A., Paneque, M., Curtisova, V., Lunt, P. W., Pourova, R. K., MacekJr, M., Stefansdottir, V., Turchetti, D., Campos, M., Henneman, L., Godino, L., Skirton, H. & Cornel, M. C., 1 Jul 2019, In : Genetics in Medicine. 21, 7, p. 1669-1669 1 p.

Research output: Contribution to journal › Erratum › Academic › peer-review

Open Access