Lidewij Henneman

DR., (Principal Investigator)


Research output per year

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Personal profile

Research interests

Lidewij Henneman is professor of patient perspectives on genetic testing.
She is co-director of the Amsterdam Reproduction & Development research institute.
Her research interest is in applications of new genetic technologies concerning pregnancy and birth, and the implications for individuals and society. Her research focuses mainly on the needs, preferences and decision-making of (potential) users. In particular in relation to preconception carrier screening for recessive diseases, prenatal screening, and expansion of newborn bloodspot screening. Applications of next generation sequencing for prenatal and postnatal diagnosis of children with a congenital condition also have her attention.

She has expertise in both qualitative and quantitative research methodologies to assess the views and experiences of (potential) users such as health care professionals, patients and wider society.

She is board member of the Dutch non-invasive prenatal test (NIPT) Consortium and thereby coordinates research on women’s perspectives on NIPT (TRIDENT studies). She won the EMGO Societal Impact Award 2016 (topic NIPT), and received the Dutch Public Health Award (Volksgezondheidsprijs) for her PhD thesis on Preconceptional cystic fibrosis carrier screening. 

She (co-)published over 100 international articles (H-index 27) and supervised 13 PhD students/thesis. 


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