Lidewij Henneman

DR., (Principal Investigator)

Associate Professor, Clinical genetics
Associate Professor, Amsterdam Public Health - Quality of Care
Associate Professor, Amsterdam Reproduction and Development

Research output per year

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Personal profile

Research interests

Lidewij Henneman is co-Director of the Amsterdam Reproduction & Development research institute.
Her research focuses on the implementation, dynamics and impact of new genetic applications in preconception, prenatal and neonatal screening. She has expertise in both qualitative and quantitative research methodologies to assess the views and experiences of (potential) users such as health care professionals, patients and wider society.

Specific projects are in the field of community genetics and public health genomics such as:
• implementation of preconception carrier screening and non-invasive prenatal testing (NIPT);
• genetic risk and (reproductive) decision making;
• genetic knowledge, communication and education.

She is board member of the Dutch NIPT Consortium and thereby coordinates research on women’s perspectives on NIPT (TRIDENT studies). She won the EMGO+ Societal Impact Award 2016 (topic NIPT), and received the Dutch Public Health Award (Volksgezondheidsprijs) for her PhD thesis on Preconceptional cystic fibrosis carrier screening.
She (co-)published over 100 international articles (H-index 27) and supervised 13 PhD students.

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Research Output

129 Article
16 Meeting Abstract
9 Chapter
3 Review article
5 More

Attitudes of the general population towards preconception expanded carrier screening for autosomal recessive disorders including inborn errors of metabolism

Nijmeijer, S. C. M., Conijn, T., Lakeman, P., Henneman, L., Wijburg, F. A. & Haverman, L., 1 Jan 2019, In : Molecular Genetics and Metabolism. 126, 1, p. 14-22 9 p.

Research output: Contribution to journal › Article › Academic › peer-review

Correction: The Gen-Equip Project: evaluation and impact of genetics e-learning resources for primary care in six European languages (Genetics in Medicine, (2019), 21, 3, (718-726), 10.1038/s41436-018-0132-3)

Jackson, L., O’Connor, A., Paneque, M., Curtisova, V., Lunt, P. W., Pourova, R. K., MacekJr, M., Stefansdottir, V., Turchetti, D., Campos, M., Henneman, L., Godino, L., Skirton, H. & Cornel, M. C., 1 Jul 2019, In : Genetics in Medicine. 21, 7, p. 1669-1669 1 p.

Research output: Contribution to journal › Erratum › Academic › peer-review

Open Access

Dilemma of Reporting Incidental Findings in Newborn Screening Programs for SCID: Parents’ Perspective on Ataxia Telangiectasia

Blom, M., Schoenaker, M. H. D., Hulst, M., de Vries, M. C., Weemaes, C. M. R., Willemsen, M. A. A. P., Henneman, L. & van der Burg, M., 6 Nov 2019, In : Frontiers in Immunology. 10, 2438.

Research output: Contribution to journal › Article › Academic › peer-review

Open Access