Lidewij Henneman

DR., (Principal Investigator)

19972020

Research output per year

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Personal profile

Research interests

Lidewij Henneman is co-Director of the Amsterdam Reproduction & Development research institute. Her research interest is in applications of new genetic technologies concerning pregnancy and birth, and the implications for individuals and society. Her research focuses mainly on the needs, preferences and decision-making of (potential) users. In particular in relation to preconception carrier screening for recessive diseases, prenatal screening, and expansion of newborn bloodspot screening. Applications of next generation sequencing for prenatal and postnatal diagnosis of children with a congenital condition also have her attention.

She has expertise in both qualitative and quantitative research methodologies to assess the views and experiences of (potential) users such as health care professionals, patients and wider society.

She is board member of the Dutch non-invasive prenatal test (NIPT) Consortium and thereby coordinates research on women’s perspectives on NIPT (TRIDENT studies). She won the EMGO Societal Impact Award 2016 (topic NIPT), and received the Dutch Public Health Award (Volksgezondheidsprijs) for her PhD thesis on Preconceptional cystic fibrosis carrier screening. 

She (co-)published over 100 international articles (H-index 27) and supervised 13 PhD students/thesis. 

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Research Output

Do preferred risk formats lead to better understanding? A multicenter controlled trial on communicating familial breast cancer risks using different risk formats

Henneman, L., van Asperen, C. J., Oosterwijk, J. C., Menko, F. H., Claassen, L. & Timmermans, D. R. M., 1 Jan 2020, In : Patient Preference and Adherence. 14, p. 333-342 10 p.

Research output: Contribution to journalArticleAcademicpeer-review

Open Access

International perspectives on the implementation of reproductive carrier screening

Delatycki, M. B., Alkuraya, F., Archibald, A., Castellani, C., Cornel, M., Grody, W. W., Henneman, L., Ioannides, A. S., Kirk, E., Laing, N., Lucassen, A., Massie, J., Schuurmans, J., Thong, M-K., van Langen, I. & Zlotogora, J., 1 Feb 2020, In : Prenatal Diagnosis. 40, 3, p. 301-310 10 p.

Research output: Contribution to journalReview articleAcademicpeer-review

Attitudes of the general population towards preconception expanded carrier screening for autosomal recessive disorders including inborn errors of metabolism

Nijmeijer, S. C. M., Conijn, T., Lakeman, P., Henneman, L., Wijburg, F. A. & Haverman, L., 1 Jan 2019, In : Molecular Genetics and Metabolism. 126, 1, p. 14-22 9 p.

Research output: Contribution to journalArticleAcademicpeer-review

Correction: The Gen-Equip Project: evaluation and impact of genetics e-learning resources for primary care in six European languages (Genetics in Medicine, (2019), 21, 3, (718-726), 10.1038/s41436-018-0132-3)

Jackson, L., O’Connor, A., Paneque, M., Curtisova, V., Lunt, P. W., Pourova, R. K., MacekJr, M., Stefansdottir, V., Turchetti, D., Campos, M., Henneman, L., Godino, L., Skirton, H. & Cornel, M. C., 1 Jul 2019, In : Genetics in Medicine. 21, 7, p. 1669-1669 1 p.

Research output: Contribution to journalErratumAcademicpeer-review

Open Access

Activities

  • 4 Membership of committee
  • 3 Membership of board
  • 1 Membership of network

Health Council of the Netherlands (External organisation)

Lidewij Henneman (Member)
20192020

Activity: MembershipMembership of committee

Amsterdam Reproduction & Development (Organisational unit)

Lidewij Henneman (Chair)
1 Jan 2016 → …

Activity: MembershipMembership of board

Landelijke Werkgroep Preconceptie Dragerschapsscreening (VKGN/VKGL) (External organisation)

Lidewij Henneman (Member)
1 Jan 2015 → …

Activity: MembershipMembership of committee

Health Council of the Netherlands (External organisation)

Lidewij Henneman (Member)
20152016

Activity: MembershipMembership of committee

Health Council of the Netherlands (External organisation)

Lidewij Henneman (Member)
20152016

Activity: MembershipMembership of committee

Press / Media

DNA-onderzoek vaak nuttig

Lidewij Henneman & Tessa van Dijk

20/09/2019

1 Media contribution

Press/Media: Expert Comment

Darmkanker- Ook erfelijke screening

MC Cornel, Lidewij Henneman & CG van El

25/10/2017

1 Media contribution

Press/Media: Expert Comment

NIPT geschikt voor hoogrisicozwangere

Lidewij Henneman

20/10/2016

1 Media contribution

Press/Media: Research

Zwangeren kiezen massaal voor NIP test

Lidewij Henneman

19/10/2016

1 Media contribution

Press/Media: Research

Prizes

EMGO Societal Impact Award 2016

Lidewij Henneman (Recipient), 2016

Prize: Other distinction