A comparison of a community-based dementia support programme and nursing home-based day care: Effects on carer needs, emotional burden and quality of life

A. Marijke van Haeften-van Dijk, Franka J. Meiland, Bart J. J. Hattink, Ton J. EM Bakker, Rose-Marie Dröes

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Objectives: Within an implementation study, we investigated the effectiveness of a combined community-based day care programme for persons with dementia and their carers versus traditional psychogeriatric nursing home-based day care. The effects on needs, sense of competence, burden and quality of life of the family carers were studied. Methods: A pretest–posttest control group design among family carers of people with dementia who joined community-based day care centres (n = 67) or nursing home-based day care centres (n = 64). Results: After six months, family carers using community-based day care more often expressed an unmet need for support regarding psychological distress than carers utilising nursing home-based day care. No effect of community-based day care on sense of competence was found. However, carers with a low sense of competence at baseline using community-based compared to nursing home-based day care became less emotionally burdened by behaviour and mood problems of their relative. Conclusion and discussion: Overall, no added value of community-based day care on needs, sense of competence, burden and quality of life was found. Increased unmet needs on psychological distress may have been caused by the increased awareness of carers participating in the carer programme of community-based day care regarding their own unmet support needs. For carers with a low sense of competence, community-based day care proves to decrease the impact of behaviour and mood problems of their relative. A larger controlled follow-up study is recommended to understand the long-term effects of community-based day care over nursing home-based day care.
Original languageEnglish
JournalDementia
DOIs
Publication statusPublished - 2019

Cite this

@article{ae70e3352686458cb1c82b08197d9b72,
title = "A comparison of a community-based dementia support programme and nursing home-based day care: Effects on carer needs, emotional burden and quality of life",
abstract = "Objectives: Within an implementation study, we investigated the effectiveness of a combined community-based day care programme for persons with dementia and their carers versus traditional psychogeriatric nursing home-based day care. The effects on needs, sense of competence, burden and quality of life of the family carers were studied. Methods: A pretest–posttest control group design among family carers of people with dementia who joined community-based day care centres (n = 67) or nursing home-based day care centres (n = 64). Results: After six months, family carers using community-based day care more often expressed an unmet need for support regarding psychological distress than carers utilising nursing home-based day care. No effect of community-based day care on sense of competence was found. However, carers with a low sense of competence at baseline using community-based compared to nursing home-based day care became less emotionally burdened by behaviour and mood problems of their relative. Conclusion and discussion: Overall, no added value of community-based day care on needs, sense of competence, burden and quality of life was found. Increased unmet needs on psychological distress may have been caused by the increased awareness of carers participating in the carer programme of community-based day care regarding their own unmet support needs. For carers with a low sense of competence, community-based day care proves to decrease the impact of behaviour and mood problems of their relative. A larger controlled follow-up study is recommended to understand the long-term effects of community-based day care over nursing home-based day care.",
author = "{van Haeften-van Dijk}, {A. Marijke} and Meiland, {Franka J.} and Hattink, {Bart J. J.} and Bakker, {Ton J. EM} and Rose-Marie Dr{\"o}es",
year = "2019",
doi = "10.1177/1471301219861767",
language = "English",
journal = "Dementia",
issn = "1471-3012",
publisher = "SAGE Publications Ltd",

}

A comparison of a community-based dementia support programme and nursing home-based day care: Effects on carer needs, emotional burden and quality of life. / van Haeften-van Dijk, A. Marijke; Meiland, Franka J.; Hattink, Bart J. J.; Bakker, Ton J. EM; Dröes, Rose-Marie.

In: Dementia, 2019.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - A comparison of a community-based dementia support programme and nursing home-based day care: Effects on carer needs, emotional burden and quality of life

AU - van Haeften-van Dijk, A. Marijke

AU - Meiland, Franka J.

AU - Hattink, Bart J. J.

AU - Bakker, Ton J. EM

AU - Dröes, Rose-Marie

PY - 2019

Y1 - 2019

N2 - Objectives: Within an implementation study, we investigated the effectiveness of a combined community-based day care programme for persons with dementia and their carers versus traditional psychogeriatric nursing home-based day care. The effects on needs, sense of competence, burden and quality of life of the family carers were studied. Methods: A pretest–posttest control group design among family carers of people with dementia who joined community-based day care centres (n = 67) or nursing home-based day care centres (n = 64). Results: After six months, family carers using community-based day care more often expressed an unmet need for support regarding psychological distress than carers utilising nursing home-based day care. No effect of community-based day care on sense of competence was found. However, carers with a low sense of competence at baseline using community-based compared to nursing home-based day care became less emotionally burdened by behaviour and mood problems of their relative. Conclusion and discussion: Overall, no added value of community-based day care on needs, sense of competence, burden and quality of life was found. Increased unmet needs on psychological distress may have been caused by the increased awareness of carers participating in the carer programme of community-based day care regarding their own unmet support needs. For carers with a low sense of competence, community-based day care proves to decrease the impact of behaviour and mood problems of their relative. A larger controlled follow-up study is recommended to understand the long-term effects of community-based day care over nursing home-based day care.

AB - Objectives: Within an implementation study, we investigated the effectiveness of a combined community-based day care programme for persons with dementia and their carers versus traditional psychogeriatric nursing home-based day care. The effects on needs, sense of competence, burden and quality of life of the family carers were studied. Methods: A pretest–posttest control group design among family carers of people with dementia who joined community-based day care centres (n = 67) or nursing home-based day care centres (n = 64). Results: After six months, family carers using community-based day care more often expressed an unmet need for support regarding psychological distress than carers utilising nursing home-based day care. No effect of community-based day care on sense of competence was found. However, carers with a low sense of competence at baseline using community-based compared to nursing home-based day care became less emotionally burdened by behaviour and mood problems of their relative. Conclusion and discussion: Overall, no added value of community-based day care on needs, sense of competence, burden and quality of life was found. Increased unmet needs on psychological distress may have been caused by the increased awareness of carers participating in the carer programme of community-based day care regarding their own unmet support needs. For carers with a low sense of competence, community-based day care proves to decrease the impact of behaviour and mood problems of their relative. A larger controlled follow-up study is recommended to understand the long-term effects of community-based day care over nursing home-based day care.

UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85070264251&origin=inward

U2 - 10.1177/1471301219861767

DO - 10.1177/1471301219861767

M3 - Article

JO - Dementia

JF - Dementia

SN - 1471-3012

ER -