A continuous juggle of invisible forces: How fatigued dialysis patients manage daily life

Wieke E. van der Borg; Petra Verdonk; Judith G. A. de Jong-Camerik; Karen Schipper; Tineke A. Abma

doi:10.1177/1359105319853340

A continuous juggle of invisible forces: How fatigued dialysis patients manage daily life

Wieke E. van der Borg, Petra Verdonk, Judith G. A. de Jong-Camerik, Karen Schipper, Tineke A. Abma

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

Dialysis patients commonly experience severe fatigue. Fatigue is known as an intrusive symptom strongly affecting perceived quality of life. A total of 23 interviews were conducted to explore how dialysis patients respond to fatigue symptoms and its consequences in daily life. A constructivist grounded theory approach guided data analysis and conceptualization of findings. Patients find themselves within a continuous decision loop, considering ones (physical) abilities and questioning ones normative beliefs and values. This inner process interacts with the outside world, and contains various ambiguities. Improved understanding of this demanding process could help to better address fatigue and positively contribute to the quality of life of dialysis patients.

Original language	English
Journal	Journal of Health Psychology
DOIs	https://doi.org/10.1177/1359105319853340
Publication status	E-pub ahead of print - 6 Jun 2019

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title = "A continuous juggle of invisible forces: How fatigued dialysis patients manage daily life",

abstract = "Dialysis patients commonly experience severe fatigue. Fatigue is known as an intrusive symptom strongly affecting perceived quality of life. A total of 23 interviews were conducted to explore how dialysis patients respond to fatigue symptoms and its consequences in daily life. A constructivist grounded theory approach guided data analysis and conceptualization of findings. Patients find themselves within a continuous decision loop, considering ones (physical) abilities and questioning ones normative beliefs and values. This inner process interacts with the outside world, and contains various ambiguities. Improved understanding of this demanding process could help to better address fatigue and positively contribute to the quality of life of dialysis patients.",

keywords = "end stage kidney disease, fatigue, gender, health psychology, qualitative methods",

author = "{van der Borg}, {Wieke E.} and Petra Verdonk and {de Jong-Camerik}, {Judith G. A.} and Karen Schipper and Abma, {Tineke A.}",

year = "2019",

month = jun,

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AU - van der Borg, Wieke E.

AU - Verdonk, Petra

AU - de Jong-Camerik, Judith G. A.

AU - Schipper, Karen

AU - Abma, Tineke A.

PY - 2019/6/6

Y1 - 2019/6/6

N2 - Dialysis patients commonly experience severe fatigue. Fatigue is known as an intrusive symptom strongly affecting perceived quality of life. A total of 23 interviews were conducted to explore how dialysis patients respond to fatigue symptoms and its consequences in daily life. A constructivist grounded theory approach guided data analysis and conceptualization of findings. Patients find themselves within a continuous decision loop, considering ones (physical) abilities and questioning ones normative beliefs and values. This inner process interacts with the outside world, and contains various ambiguities. Improved understanding of this demanding process could help to better address fatigue and positively contribute to the quality of life of dialysis patients.

AB - Dialysis patients commonly experience severe fatigue. Fatigue is known as an intrusive symptom strongly affecting perceived quality of life. A total of 23 interviews were conducted to explore how dialysis patients respond to fatigue symptoms and its consequences in daily life. A constructivist grounded theory approach guided data analysis and conceptualization of findings. Patients find themselves within a continuous decision loop, considering ones (physical) abilities and questioning ones normative beliefs and values. This inner process interacts with the outside world, and contains various ambiguities. Improved understanding of this demanding process could help to better address fatigue and positively contribute to the quality of life of dialysis patients.

KW - end stage kidney disease

KW - fatigue

KW - gender

KW - health psychology

KW - qualitative methods

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UR - https://www.ncbi.nlm.nih.gov/pubmed/31170828

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JO - Journal of Health Psychology

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ER -

A continuous juggle of invisible forces: How fatigued dialysis patients manage daily life

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