Behavior and Evolution of Young ONset Dementia part 2 (BEYOND-II) study: an intervention study aimed at improvement in the management of neuropsychiatric symptoms in institutionalized people with young onset dementia

J. C.L. van Duinen-van den IJssel, B. Appelhof, S. A. Zwijsen, M. Smalbrugge, F. R.J. Verhey, M. E. de Vugt, S. U. Zuidema, R. T.C.M. Koopmans, C. Bakker

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background:: Both neuropsychiatric symptoms (NPS) and psychotropic drug use (PDU) are common in institutionalized People with Young Onset Dementia (PwYOD) and can produce negative outcomes such as reduced quality of life and high workload. In community-dwelling PwYOD, NPS are found to be associated with unmet care needs. This emphasizes the importance of a care program for the management of NPS in institutionalized PwYOD that also addresses unmet care needs and PDU. The objectives of the Behavior and Evolution of Young ONset Dementia part 2 (BEYOND-II) study are to develop a care program for the management of NPS in institutionalized PwYOD and to evaluate its effectiveness. Methods:: The care program consists of an educational program combined with an intervention to manage NPS with the following five steps: the evaluation of psychotropic drug prescription, detection, analysis (including the detection of unmet needs), treatment and the evaluation of NPS. A stepped wedge design will be used to evaluate its effectiveness. The primary outcomes are agitation and aggression and other NPS. The secondary outcomes are PDU, quality of life, the workload of nursing staff and job satisfaction. Additionally, a process analysis and a cost-consequence analysis will be conducted. Conclusions:: The study protocol of the Beyond-II study describes the development, implementation and evaluation of a care program for the management of NPS in institutionalized PwYOD. This care program provides a structured method for the management of NPS, in which unmet needs and PDU are also addressed.

Original languageEnglish
Pages (from-to)437-446
Number of pages10
JournalInternational Psychogeriatrics
Volume30
Issue number3
DOIs
Publication statusPublished - 1 Mar 2018

Cite this

@article{e0e3341ed0bf42ff870a29567d850f79,
title = "Behavior and Evolution of Young ONset Dementia part 2 (BEYOND-II) study: an intervention study aimed at improvement in the management of neuropsychiatric symptoms in institutionalized people with young onset dementia",
abstract = "Background:: Both neuropsychiatric symptoms (NPS) and psychotropic drug use (PDU) are common in institutionalized People with Young Onset Dementia (PwYOD) and can produce negative outcomes such as reduced quality of life and high workload. In community-dwelling PwYOD, NPS are found to be associated with unmet care needs. This emphasizes the importance of a care program for the management of NPS in institutionalized PwYOD that also addresses unmet care needs and PDU. The objectives of the Behavior and Evolution of Young ONset Dementia part 2 (BEYOND-II) study are to develop a care program for the management of NPS in institutionalized PwYOD and to evaluate its effectiveness. Methods:: The care program consists of an educational program combined with an intervention to manage NPS with the following five steps: the evaluation of psychotropic drug prescription, detection, analysis (including the detection of unmet needs), treatment and the evaluation of NPS. A stepped wedge design will be used to evaluate its effectiveness. The primary outcomes are agitation and aggression and other NPS. The secondary outcomes are PDU, quality of life, the workload of nursing staff and job satisfaction. Additionally, a process analysis and a cost-consequence analysis will be conducted. Conclusions:: The study protocol of the Beyond-II study describes the development, implementation and evaluation of a care program for the management of NPS in institutionalized PwYOD. This care program provides a structured method for the management of NPS, in which unmet needs and PDU are also addressed.",
keywords = "care program, NPS, nursing home, nursing staff, young onset dementia",
author = "{van Duinen-van den IJssel}, {J. C.L.} and B. Appelhof and Zwijsen, {S. A.} and M. Smalbrugge and Verhey, {F. R.J.} and {de Vugt}, {M. E.} and Zuidema, {S. U.} and Koopmans, {R. T.C.M.} and C. Bakker",
year = "2018",
month = "3",
day = "1",
doi = "10.1017/S1041610217000941",
language = "English",
volume = "30",
pages = "437--446",
journal = "Psychogeriatrics",
issn = "1041-6102",
publisher = "Cambridge University Press",
number = "3",

}

Behavior and Evolution of Young ONset Dementia part 2 (BEYOND-II) study : an intervention study aimed at improvement in the management of neuropsychiatric symptoms in institutionalized people with young onset dementia. / van Duinen-van den IJssel, J. C.L.; Appelhof, B.; Zwijsen, S. A.; Smalbrugge, M.; Verhey, F. R.J.; de Vugt, M. E.; Zuidema, S. U.; Koopmans, R. T.C.M.; Bakker, C.

In: International Psychogeriatrics, Vol. 30, No. 3, 01.03.2018, p. 437-446.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - Behavior and Evolution of Young ONset Dementia part 2 (BEYOND-II) study

T2 - an intervention study aimed at improvement in the management of neuropsychiatric symptoms in institutionalized people with young onset dementia

AU - van Duinen-van den IJssel, J. C.L.

AU - Appelhof, B.

AU - Zwijsen, S. A.

AU - Smalbrugge, M.

AU - Verhey, F. R.J.

AU - de Vugt, M. E.

AU - Zuidema, S. U.

AU - Koopmans, R. T.C.M.

AU - Bakker, C.

PY - 2018/3/1

Y1 - 2018/3/1

N2 - Background:: Both neuropsychiatric symptoms (NPS) and psychotropic drug use (PDU) are common in institutionalized People with Young Onset Dementia (PwYOD) and can produce negative outcomes such as reduced quality of life and high workload. In community-dwelling PwYOD, NPS are found to be associated with unmet care needs. This emphasizes the importance of a care program for the management of NPS in institutionalized PwYOD that also addresses unmet care needs and PDU. The objectives of the Behavior and Evolution of Young ONset Dementia part 2 (BEYOND-II) study are to develop a care program for the management of NPS in institutionalized PwYOD and to evaluate its effectiveness. Methods:: The care program consists of an educational program combined with an intervention to manage NPS with the following five steps: the evaluation of psychotropic drug prescription, detection, analysis (including the detection of unmet needs), treatment and the evaluation of NPS. A stepped wedge design will be used to evaluate its effectiveness. The primary outcomes are agitation and aggression and other NPS. The secondary outcomes are PDU, quality of life, the workload of nursing staff and job satisfaction. Additionally, a process analysis and a cost-consequence analysis will be conducted. Conclusions:: The study protocol of the Beyond-II study describes the development, implementation and evaluation of a care program for the management of NPS in institutionalized PwYOD. This care program provides a structured method for the management of NPS, in which unmet needs and PDU are also addressed.

AB - Background:: Both neuropsychiatric symptoms (NPS) and psychotropic drug use (PDU) are common in institutionalized People with Young Onset Dementia (PwYOD) and can produce negative outcomes such as reduced quality of life and high workload. In community-dwelling PwYOD, NPS are found to be associated with unmet care needs. This emphasizes the importance of a care program for the management of NPS in institutionalized PwYOD that also addresses unmet care needs and PDU. The objectives of the Behavior and Evolution of Young ONset Dementia part 2 (BEYOND-II) study are to develop a care program for the management of NPS in institutionalized PwYOD and to evaluate its effectiveness. Methods:: The care program consists of an educational program combined with an intervention to manage NPS with the following five steps: the evaluation of psychotropic drug prescription, detection, analysis (including the detection of unmet needs), treatment and the evaluation of NPS. A stepped wedge design will be used to evaluate its effectiveness. The primary outcomes are agitation and aggression and other NPS. The secondary outcomes are PDU, quality of life, the workload of nursing staff and job satisfaction. Additionally, a process analysis and a cost-consequence analysis will be conducted. Conclusions:: The study protocol of the Beyond-II study describes the development, implementation and evaluation of a care program for the management of NPS in institutionalized PwYOD. This care program provides a structured method for the management of NPS, in which unmet needs and PDU are also addressed.

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