Clinical and community genetics services in the Dutch Caribbean

Eline A. Verberne; Ginette M. Ecury-Goossen; Meindert E. Manshande; Maria Ponson-Wever; Maartje de Vroomen; Martijn Tilanus; Marcel M. A. M. Mannens; Lidewij Henneman; Mieke M. van Haelst

doi:10.1007/s12687-021-00515-6

Clinical and community genetics services in the Dutch Caribbean

Eline A. Verberne, Ginette M. Ecury-Goossen, Meindert E. Manshande, Maria Ponson-Wever, Maartje de Vroomen, Martijn Tilanus, Marcel M. A. M. Mannens, Lidewij Henneman, Mieke M. van Haelst^*

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

The Caribbean part of the Kingdom of the Netherlands consists of six islands: Aruba, Bonaire, Curaçao, St. Maarten, St. Eustatius, and Saba. Because of their small size and relative remoteness, they face several economic and healthcare challenges, including limited access to genetics services. In this article, we provide an overview of the clinical and community genetics services that are available in the Dutch Caribbean. In particular, we describe our joint pediatric-genetics clinic with a visiting clinical geneticist that was established in 2011 to provide clinical genetics services for the pediatric population of the Dutch Caribbean.

Original language	English
Pages (from-to)	497-501
Number of pages	5
Journal	Journal of Community Genetics
Volume	12
Issue number	3
Early online date	2021
DOIs	https://doi.org/10.1007/s12687-021-00515-6 https://doi.org/10.1007/s12687-021-00515-6
Publication status	Published - Jul 2021

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title = "Clinical and community genetics services in the Dutch Caribbean",

abstract = "The Caribbean part of the Kingdom of the Netherlands consists of six islands: Aruba, Bonaire, Cura{\c c}ao, St. Maarten, St. Eustatius, and Saba. Because of their small size and relative remoteness, they face several economic and healthcare challenges, including limited access to genetics services. In this article, we provide an overview of the clinical and community genetics services that are available in the Dutch Caribbean. In particular, we describe our joint pediatric-genetics clinic with a visiting clinical geneticist that was established in 2011 to provide clinical genetics services for the pediatric population of the Dutch Caribbean.",

keywords = "Clinical genetics, Community genetics, Dutch Caribbean, Genetics services",

author = "Verberne, {Eline A.} and Ecury-Goossen, {Ginette M.} and Manshande, {Meindert E.} and Maria Ponson-Wever and {de Vroomen}, Maartje and Martijn Tilanus and Mannens, {Marcel M. A. M.} and Lidewij Henneman and {van Haelst}, {Mieke M.}",

note = "Publisher Copyright: {\textcopyright} 2021, The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature. Copyright: Copyright 2021 Elsevier B.V., All rights reserved.",

year = "2021",

month = jul,

doi = "10.1007/s12687-021-00515-6",

language = "English",

volume = "12",

pages = "497--501",

journal = "Journal of Community Genetics",

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TY - JOUR

T1 - Clinical and community genetics services in the Dutch Caribbean

AU - Verberne, Eline A.

AU - Ecury-Goossen, Ginette M.

AU - Manshande, Meindert E.

AU - Ponson-Wever, Maria

AU - de Vroomen, Maartje

AU - Tilanus, Martijn

AU - Mannens, Marcel M. A. M.

AU - Henneman, Lidewij

AU - van Haelst, Mieke M.

PY - 2021/7

Y1 - 2021/7

N2 - The Caribbean part of the Kingdom of the Netherlands consists of six islands: Aruba, Bonaire, Curaçao, St. Maarten, St. Eustatius, and Saba. Because of their small size and relative remoteness, they face several economic and healthcare challenges, including limited access to genetics services. In this article, we provide an overview of the clinical and community genetics services that are available in the Dutch Caribbean. In particular, we describe our joint pediatric-genetics clinic with a visiting clinical geneticist that was established in 2011 to provide clinical genetics services for the pediatric population of the Dutch Caribbean.

AB - The Caribbean part of the Kingdom of the Netherlands consists of six islands: Aruba, Bonaire, Curaçao, St. Maarten, St. Eustatius, and Saba. Because of their small size and relative remoteness, they face several economic and healthcare challenges, including limited access to genetics services. In this article, we provide an overview of the clinical and community genetics services that are available in the Dutch Caribbean. In particular, we describe our joint pediatric-genetics clinic with a visiting clinical geneticist that was established in 2011 to provide clinical genetics services for the pediatric population of the Dutch Caribbean.

KW - Clinical genetics

KW - Community genetics

KW - Dutch Caribbean

KW - Genetics services

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UR - https://www.ncbi.nlm.nih.gov/pubmed/33751485

U2 - 10.1007/s12687-021-00515-6

DO - 10.1007/s12687-021-00515-6

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C2 - 33717365

SN - 1868-310X

VL - 12

SP - 497

EP - 501

JO - Journal of Community Genetics

JF - Journal of Community Genetics

IS - 3

ER -

Clinical and community genetics services in the Dutch Caribbean

Abstract

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