Defining the research agenda to measure and reduce tuberculosis stigmas

K. MacIntyre, M. I. Bakker, S. Bergson, R. Bhavaraju, V. Bond, J. Chikovore, C. Colvin, G. M. Craig, A. L. Cremers, A. Daftary, N. Engel, N. Ferris France, E. Jaramillo, M. Kimerling, A. Kipp, S. Krishnaratne, C. Mergenthaler, M. Ngicho, L. Redwood, E. J.J. RoodN. Sommerland, A. Stangl, A. Van Rie, W. Van Brakel, E. Wouters, A. Zwerling, E. M.H. Mitchell*

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Crucial to finding and treating the 4 million tuberculosis (TB) patients currently missed by national TB programmes, TB stigma is receiving well-deserved and longdelayed attention at the global level. However, the ability to measure and evaluate the success of TB stigmareduction efforts is limited by the need for additional tools. At a 2016 TB stigma-measurement meeting held in The Hague, The Netherlands, stigma experts discussed and proposed a research agenda around four themes: 1) drivers: what are the main drivers and domains of TB stigma(s)?; 2) consequences: how consequential are TB stigmas and how are negative impacts most felt?; 3) burden: what is the global prevalence and distribution of TB stigma(s) and what explains any variation? 4): intervention: what can be done to reduce the extent and impact of TB stigma(s)? Each theme was further subdivided into research topics to be addressed to move the agenda forward. These include greater clarity on what causes TB stigmas to emerge and thrive, the difficulty of measuring the complexity of stigma, and the improbability of a universal stigma 'cure'. Nevertheless, these challenges should not hinder investments in the measurement and reduction of TB stigma.We believe it is time to focus on how, and not whether, the global community should measure and reduce TB stigma.

Original languageEnglish
Pages (from-to)S87-S96
JournalInternational Journal of Tuberculosis and Lung Disease
Volume21
DOIs
Publication statusPublished - 1 Nov 2017

Cite this

MacIntyre, K., Bakker, M. I., Bergson, S., Bhavaraju, R., Bond, V., Chikovore, J., ... Mitchell, E. M. H. (2017). Defining the research agenda to measure and reduce tuberculosis stigmas. International Journal of Tuberculosis and Lung Disease, 21, S87-S96. https://doi.org/10.5588/ijtld.17.0151