Dutch-Flemish translation and cross-cultural adaption of the Spinal Cord Injury-Quality of Life (SCI-QOL) short forms

E. M. J. R. Brouwers; C. B. Terwee; L. D. Roorda; A. F. Hosman; H. van de Meent; R. H. M. A. Bartels

doi:10.1007/s00586-022-07190-2

Dutch-Flemish translation and cross-cultural adaption of the Spinal Cord Injury-Quality of Life (SCI-QOL) short forms

E. M. J. R. Brouwers^*, C. B. Terwee, L. D. Roorda, A. F. Hosman, H. van de Meent, R. H. M. A. Bartels

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

Purpose: A spinal cord injury (SCI) has a large impact on a person’s physical, psychological, and social health. Previous studies focused on physical recovery in patients with SCI and assessed their health-related quality of life (HRQOL) with general questionnaires, which often contain irrelevant questions. The SCI-QOL questionnaire was developed to specifically assess the HRQOL of the SCI population. A comprehensive translation and cross-cultural adaptation are required to use this questionnaire in the Netherlands and Flanders, Belgium. Methods: All 23 short forms of the SCI-QOL for adults were translated from English into Dutch-Flemish using the Functional Assessment of Chronic Illness Therapy translation methodology, with a cognitive debriefing being performed with 10 patients with SCI and 10 persons from the general population. Results: The Dutch-Flemish PROMIS group previously translated 46 of the 207 items in the 23 short forms. Here, we achieved an acceptable translation of the other 161 items. A single Dutch-Flemish translation was obtained for 20 short forms, while separate Dutch and Flemish translations were necessary for the short forms Ambulation, Manual Wheelchair, and Stigma. Conclusion: The Dutch-Flemish translation of the SCI-QOL is now available for clinical and research purposes. Future studies should focus on the psychometric properties of this cross-culturally adapted version.

Original language	English
Pages (from-to)	1349-1357
Number of pages	9
Journal	European Spine Journal
Volume	31
Issue number	6
Early online date	2022
DOIs	https://doi.org/10.1007/s00586-022-07190-2
Publication status	Published - Jun 2022

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10.1007/s00586-022-07190-2

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@article{5b97ebd545f7455b9044782f4145fa23,

title = "Dutch-Flemish translation and cross-cultural adaption of the Spinal Cord Injury-Quality of Life (SCI-QOL) short forms",

abstract = "Purpose: A spinal cord injury (SCI) has a large impact on a person{\textquoteright}s physical, psychological, and social health. Previous studies focused on physical recovery in patients with SCI and assessed their health-related quality of life (HRQOL) with general questionnaires, which often contain irrelevant questions. The SCI-QOL questionnaire was developed to specifically assess the HRQOL of the SCI population. A comprehensive translation and cross-cultural adaptation are required to use this questionnaire in the Netherlands and Flanders, Belgium. Methods: All 23 short forms of the SCI-QOL for adults were translated from English into Dutch-Flemish using the Functional Assessment of Chronic Illness Therapy translation methodology, with a cognitive debriefing being performed with 10 patients with SCI and 10 persons from the general population. Results: The Dutch-Flemish PROMIS group previously translated 46 of the 207 items in the 23 short forms. Here, we achieved an acceptable translation of the other 161 items. A single Dutch-Flemish translation was obtained for 20 short forms, while separate Dutch and Flemish translations were necessary for the short forms Ambulation, Manual Wheelchair, and Stigma. Conclusion: The Dutch-Flemish translation of the SCI-QOL is now available for clinical and research purposes. Future studies should focus on the psychometric properties of this cross-culturally adapted version.",

keywords = "Quality of life, Questionnaire, Short form, Spinal cord injury, Translation",

author = "Brouwers, {E. M. J. R.} and Terwee, {C. B.} and Roorda, {L. D.} and Hosman, {A. F.} and {van de Meent}, H. and Bartels, {R. H. M. A.}",

note = "Funding Information: The authors acknowledge David Tulsky (MD, PhD) and research team; Hans Delye (MD, PhD); Henk van de Meent (MD, PhD); Caroline Terwee (PhD); Lisa Hewett; Truus Hewett; Jan Brouwers (BEd); Ineke Hazelzet ((DON), MSc); Radboud In{\textquoteright}to Languages; special credit to all participants of the cognitive debriefing. Funding Information: The Dutch-Flemish translation of the first 17 PROMIS item banks was financially supported by a grant from the Dutch Arthritis Association. Publisher Copyright: {\textcopyright} 2022, The Author(s).",

year = "2022",

month = jun,

doi = "10.1007/s00586-022-07190-2",

language = "English",

volume = "31",

pages = "1349--1357",

journal = "European Spine Journal",

issn = "0940-6719",

publisher = "Springer Verlag",

number = "6",

}

TY - JOUR

T1 - Dutch-Flemish translation and cross-cultural adaption of the Spinal Cord Injury-Quality of Life (SCI-QOL) short forms

AU - Brouwers, E. M. J. R.

AU - Terwee, C. B.

AU - Roorda, L. D.

AU - Hosman, A. F.

AU - van de Meent, H.

AU - Bartels, R. H. M. A.

N1 - Funding Information: The authors acknowledge David Tulsky (MD, PhD) and research team; Hans Delye (MD, PhD); Henk van de Meent (MD, PhD); Caroline Terwee (PhD); Lisa Hewett; Truus Hewett; Jan Brouwers (BEd); Ineke Hazelzet ((DON), MSc); Radboud In’to Languages; special credit to all participants of the cognitive debriefing. Funding Information: The Dutch-Flemish translation of the first 17 PROMIS item banks was financially supported by a grant from the Dutch Arthritis Association. Publisher Copyright: © 2022, The Author(s).

PY - 2022/6

Y1 - 2022/6

N2 - Purpose: A spinal cord injury (SCI) has a large impact on a person’s physical, psychological, and social health. Previous studies focused on physical recovery in patients with SCI and assessed their health-related quality of life (HRQOL) with general questionnaires, which often contain irrelevant questions. The SCI-QOL questionnaire was developed to specifically assess the HRQOL of the SCI population. A comprehensive translation and cross-cultural adaptation are required to use this questionnaire in the Netherlands and Flanders, Belgium. Methods: All 23 short forms of the SCI-QOL for adults were translated from English into Dutch-Flemish using the Functional Assessment of Chronic Illness Therapy translation methodology, with a cognitive debriefing being performed with 10 patients with SCI and 10 persons from the general population. Results: The Dutch-Flemish PROMIS group previously translated 46 of the 207 items in the 23 short forms. Here, we achieved an acceptable translation of the other 161 items. A single Dutch-Flemish translation was obtained for 20 short forms, while separate Dutch and Flemish translations were necessary for the short forms Ambulation, Manual Wheelchair, and Stigma. Conclusion: The Dutch-Flemish translation of the SCI-QOL is now available for clinical and research purposes. Future studies should focus on the psychometric properties of this cross-culturally adapted version.

AB - Purpose: A spinal cord injury (SCI) has a large impact on a person’s physical, psychological, and social health. Previous studies focused on physical recovery in patients with SCI and assessed their health-related quality of life (HRQOL) with general questionnaires, which often contain irrelevant questions. The SCI-QOL questionnaire was developed to specifically assess the HRQOL of the SCI population. A comprehensive translation and cross-cultural adaptation are required to use this questionnaire in the Netherlands and Flanders, Belgium. Methods: All 23 short forms of the SCI-QOL for adults were translated from English into Dutch-Flemish using the Functional Assessment of Chronic Illness Therapy translation methodology, with a cognitive debriefing being performed with 10 patients with SCI and 10 persons from the general population. Results: The Dutch-Flemish PROMIS group previously translated 46 of the 207 items in the 23 short forms. Here, we achieved an acceptable translation of the other 161 items. A single Dutch-Flemish translation was obtained for 20 short forms, while separate Dutch and Flemish translations were necessary for the short forms Ambulation, Manual Wheelchair, and Stigma. Conclusion: The Dutch-Flemish translation of the SCI-QOL is now available for clinical and research purposes. Future studies should focus on the psychometric properties of this cross-culturally adapted version.

KW - Quality of life

KW - Questionnaire

KW - Short form

KW - Spinal cord injury

KW - Translation

UR - http://www.scopus.com/inward/record.url?scp=85127545992&partnerID=8YFLogxK

U2 - 10.1007/s00586-022-07190-2

DO - 10.1007/s00586-022-07190-2

M3 - Article

C2 - 35376985

SN - 0940-6719

VL - 31

SP - 1349

EP - 1357

JO - European Spine Journal

JF - European Spine Journal

IS - 6

ER -

Dutch-Flemish translation and cross-cultural adaption of the Spinal Cord Injury-Quality of Life (SCI-QOL) short forms

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