Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Purpose: The current study aimed to evaluate the feasibility of RetinoQuest in clinical practice, from survivors and healthcare professionals’ (HCPs) point of view. Methods: RetinoQuest is a touch screen computer program to monitor health-related quality of life (HRQoL) of retinoblastoma survivors via patient-reported outcome measures (PROMs) targeting children (4–10 years) as evaluated by their parents (proxy measures), adolescents (11–18 years), and adults. Feasibility was evaluated by the actual time taken to complete the PROMs, acceptability of the time as perceived by the users, the content of PROMs in RetinoQuest, and overall satisfaction with RetinoQuest. Results: Ninety-six survivors participated: 41 parents of children, 38 adolescents, and 17 adults. Mean time to complete the evaluation form was 7.8 min (median 6.7, range 2.4–24.5), and 90% of the users stated that the time needed to complete PROMs in RetinoQuest was acceptable. The majority of users reported that it was important to answer the questions (88% of the parents, 66% of the adolescents, and 76% of the adult survivors) and that all important issues were covered, e.g., no missing questions (78, 84, and 76%, respectively). Satisfaction rate was high, 7.8 according to parents, 8.1 according to adolescents, and 7.7 for adults. Conclusions: RetinoQuest is a feasible e-health application to monitor HRQoL in retinoblastoma survivors in clinical practice. Implications for cancer survivors: This tool allows for open and structured communication which can lead to early detection of psychosocial impacts on quality of life and referral of the retinoblastoma survivors.

Original languageEnglish
Pages (from-to)683-690
Number of pages8
JournalJournal of Cancer Survivorship
Volume11
Issue number6
DOIs
Publication statusPublished - 1 Dec 2017

Cite this

@article{f1174c25fe914b04b78000fcfb77a864,
title = "Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors",
abstract = "Purpose: The current study aimed to evaluate the feasibility of RetinoQuest in clinical practice, from survivors and healthcare professionals’ (HCPs) point of view. Methods: RetinoQuest is a touch screen computer program to monitor health-related quality of life (HRQoL) of retinoblastoma survivors via patient-reported outcome measures (PROMs) targeting children (4–10 years) as evaluated by their parents (proxy measures), adolescents (11–18 years), and adults. Feasibility was evaluated by the actual time taken to complete the PROMs, acceptability of the time as perceived by the users, the content of PROMs in RetinoQuest, and overall satisfaction with RetinoQuest. Results: Ninety-six survivors participated: 41 parents of children, 38 adolescents, and 17 adults. Mean time to complete the evaluation form was 7.8 min (median 6.7, range 2.4–24.5), and 90{\%} of the users stated that the time needed to complete PROMs in RetinoQuest was acceptable. The majority of users reported that it was important to answer the questions (88{\%} of the parents, 66{\%} of the adolescents, and 76{\%} of the adult survivors) and that all important issues were covered, e.g., no missing questions (78, 84, and 76{\%}, respectively). Satisfaction rate was high, 7.8 according to parents, 8.1 according to adolescents, and 7.7 for adults. Conclusions: RetinoQuest is a feasible e-health application to monitor HRQoL in retinoblastoma survivors in clinical practice. Implications for cancer survivors: This tool allows for open and structured communication which can lead to early detection of psychosocial impacts on quality of life and referral of the retinoblastoma survivors.",
keywords = "Clinical practice, E-health, Patient reported outcomes, Psychosocial, Quality of life, Retinoblastoma",
author = "McNeill, {Nuray A.} and Kors, {Wijnanda A.} and Bosscha, {Machteld I.} and {van Dijk}, Jennifer and Fabius, {Armida W.M.} and Ton Houffelaar and {Verdonck-de Leeuw}, {Irma M.} and Moll, {Annette C.}",
year = "2017",
month = "12",
day = "1",
doi = "10.1007/s11764-017-0642-z",
language = "English",
volume = "11",
pages = "683--690",
journal = "Journal of Cancer Survivorship",
issn = "1932-2259",
publisher = "Springer New York",
number = "6",

}

Feasibility of RetinoQuest : e-health application to facilitate and improve additional care for retinoblastoma survivors. / McNeill, Nuray A.; Kors, Wijnanda A.; Bosscha, Machteld I.; van Dijk, Jennifer; Fabius, Armida W.M.; Houffelaar, Ton; Verdonck-de Leeuw, Irma M.; Moll, Annette C.

In: Journal of Cancer Survivorship, Vol. 11, No. 6, 01.12.2017, p. 683-690.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - Feasibility of RetinoQuest

T2 - e-health application to facilitate and improve additional care for retinoblastoma survivors

AU - McNeill, Nuray A.

AU - Kors, Wijnanda A.

AU - Bosscha, Machteld I.

AU - van Dijk, Jennifer

AU - Fabius, Armida W.M.

AU - Houffelaar, Ton

AU - Verdonck-de Leeuw, Irma M.

AU - Moll, Annette C.

PY - 2017/12/1

Y1 - 2017/12/1

N2 - Purpose: The current study aimed to evaluate the feasibility of RetinoQuest in clinical practice, from survivors and healthcare professionals’ (HCPs) point of view. Methods: RetinoQuest is a touch screen computer program to monitor health-related quality of life (HRQoL) of retinoblastoma survivors via patient-reported outcome measures (PROMs) targeting children (4–10 years) as evaluated by their parents (proxy measures), adolescents (11–18 years), and adults. Feasibility was evaluated by the actual time taken to complete the PROMs, acceptability of the time as perceived by the users, the content of PROMs in RetinoQuest, and overall satisfaction with RetinoQuest. Results: Ninety-six survivors participated: 41 parents of children, 38 adolescents, and 17 adults. Mean time to complete the evaluation form was 7.8 min (median 6.7, range 2.4–24.5), and 90% of the users stated that the time needed to complete PROMs in RetinoQuest was acceptable. The majority of users reported that it was important to answer the questions (88% of the parents, 66% of the adolescents, and 76% of the adult survivors) and that all important issues were covered, e.g., no missing questions (78, 84, and 76%, respectively). Satisfaction rate was high, 7.8 according to parents, 8.1 according to adolescents, and 7.7 for adults. Conclusions: RetinoQuest is a feasible e-health application to monitor HRQoL in retinoblastoma survivors in clinical practice. Implications for cancer survivors: This tool allows for open and structured communication which can lead to early detection of psychosocial impacts on quality of life and referral of the retinoblastoma survivors.

AB - Purpose: The current study aimed to evaluate the feasibility of RetinoQuest in clinical practice, from survivors and healthcare professionals’ (HCPs) point of view. Methods: RetinoQuest is a touch screen computer program to monitor health-related quality of life (HRQoL) of retinoblastoma survivors via patient-reported outcome measures (PROMs) targeting children (4–10 years) as evaluated by their parents (proxy measures), adolescents (11–18 years), and adults. Feasibility was evaluated by the actual time taken to complete the PROMs, acceptability of the time as perceived by the users, the content of PROMs in RetinoQuest, and overall satisfaction with RetinoQuest. Results: Ninety-six survivors participated: 41 parents of children, 38 adolescents, and 17 adults. Mean time to complete the evaluation form was 7.8 min (median 6.7, range 2.4–24.5), and 90% of the users stated that the time needed to complete PROMs in RetinoQuest was acceptable. The majority of users reported that it was important to answer the questions (88% of the parents, 66% of the adolescents, and 76% of the adult survivors) and that all important issues were covered, e.g., no missing questions (78, 84, and 76%, respectively). Satisfaction rate was high, 7.8 according to parents, 8.1 according to adolescents, and 7.7 for adults. Conclusions: RetinoQuest is a feasible e-health application to monitor HRQoL in retinoblastoma survivors in clinical practice. Implications for cancer survivors: This tool allows for open and structured communication which can lead to early detection of psychosocial impacts on quality of life and referral of the retinoblastoma survivors.

KW - Clinical practice

KW - E-health

KW - Patient reported outcomes

KW - Psychosocial

KW - Quality of life

KW - Retinoblastoma

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U2 - 10.1007/s11764-017-0642-z

DO - 10.1007/s11764-017-0642-z

M3 - Article

VL - 11

SP - 683

EP - 690

JO - Journal of Cancer Survivorship

JF - Journal of Cancer Survivorship

SN - 1932-2259

IS - 6

ER -