First experience with electronic feedback of the Psychosocial Assessment Tool in pediatric cancer care

Sasja A. Schepers*, Simone M. Sint Nicolaas, Heleen Maurice-Stam, Elisabeth M. van Dijk-Lokkart, Esther M.M. van den Bergh, Nienke de Boer, Chris M. Verhaak, Martha A. Grootenhuis

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Purpose: The Psychosocial Assessment Tool (PAT) is a brief family screener, identifying families at universal or elevated risk for psychosocial problems. This study aimed to determine the feasibility and usability of the electronic PAT (ePAT) in pediatric cancer care. Methods: Eighty-six parents of newly diagnosed children with cancer (0–18 years) agreed to participate and registered at the website www.hetklikt.nu (58%). Seventy-five families completed the ePAT at approximately 1 month post-diagnosis. Answers were transformed into an electronic PROfile (PAT ePROfile) and fed back to the psychosocial team. Team members completed a semi-structured evaluation questionnaire. Feasibility was measured as the percentage of website registrations, completed ePATs, and PAT ePROfiles reviewed or discussed by the team. Usability included perceived match of the PAT ePROfile with the team’s own risk estimation, perceived added value, and perceived actions undertaken as a result of the PAT ePROfile. Results: Feasibility was 70% for website registration, 87% for completed ePATs, 85% for PAT ePROfile reviewing, and 67% for ePROfile discussion. Team members reported that the PAT ePROfile matched with their own risk estimation (M = 7.92, SD = 1.88) and did not provide additional information (M = 2.18, SD = 2.30). According to the team, actions were undertaken for 25% of the families as a result of the PAT ePROfile. More actions were undertaken for families with elevated risk scores compared to universal risk scores (p = .007). Conclusions: Implementation of the ePAT seems generally feasible, but it is not always clear how this screener adds to current clinical practice. Strategies should be developed together with team members to improve quick exchange of ePAT results and allocate care according to the needs of the families.

Original languageEnglish
Pages (from-to)3113-3121
Number of pages9
JournalSupportive Care in Cancer
Volume25
Issue number10
DOIs
Publication statusPublished - 1 Oct 2017

Cite this

Schepers, S. A., Sint Nicolaas, S. M., Maurice-Stam, H., van Dijk-Lokkart, E. M., van den Bergh, E. M. M., de Boer, N., ... Grootenhuis, M. A. (2017). First experience with electronic feedback of the Psychosocial Assessment Tool in pediatric cancer care. Supportive Care in Cancer, 25(10), 3113-3121. https://doi.org/10.1007/s00520-017-3719-3