Abstract
| Original language | English |
|---|---|
| Pages (from-to) | 1410-1420 |
| Journal | Disability and Rehabilitation |
| Volume | 40 |
| Issue number | 12 |
| DOIs | |
| Publication status | Published - 2018 |
Cite this
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Involving people with dementia in developing an interactive web tool for shared decision-making: experiences with a participatory design approach. / Span, Marijke; Hettinga, Marike; Groen-van de Ven, Leontine; Jukema, Jan; Janssen, Ruud; Vernooij-Dassen, Myrra; Eefsting, Jan; Smits, Carolien.
In: Disability and Rehabilitation, Vol. 40, No. 12, 2018, p. 1410-1420.Research output: Contribution to journal › Article › Academic › peer-review
TY - JOUR
T1 - Involving people with dementia in developing an interactive web tool for shared decision-making: experiences with a participatory design approach
AU - Span, Marijke
AU - Hettinga, Marike
AU - Groen-van de Ven, Leontine
AU - Jukema, Jan
AU - Janssen, Ruud
AU - Vernooij-Dassen, Myrra
AU - Eefsting, Jan
AU - Smits, Carolien
PY - 2018
Y1 - 2018
N2 - Purpose: The aim of this study was at gaining insight into the participatory design approach of involving people with dementia in the development of the DecideGuide, an interactive web tool facilitating shared decision-making in their care networks. Method: An explanatory case study design was used when developing the DecideGuide. A secondary analysis focused on the data gathered from the participating people with dementia during the development stages: semi-structured interviews (n = 23), four focus group interviews (n = 18), usability tests (n = 3), and a field study (n = 4). Content analysis was applied to the data. Results: Four themes showed to be important regarding the participation experiences of involving people with dementia in research: valuable feedback on content and design of the DecideGuide, motivation to participate, perspectives of people with dementia and others about distress related to involvement, and time investment. Conclusions: People with dementia can give essential feedback and, therefore, their contribution is useful and valuable. Meaningful participation of people with dementia takes time that should be taken into account. It is important for people with dementia to be able to reciprocate the efforts others make and to feel of significance to others.Implications for Rehabilitation People with dementia can contribute meaningfully to the content and design and their perspective is essential for developing useful and user-friendly tools. Participating in research activities may contribute to social inclusion, empowerment, and quality of life of people with dementia.
AB - Purpose: The aim of this study was at gaining insight into the participatory design approach of involving people with dementia in the development of the DecideGuide, an interactive web tool facilitating shared decision-making in their care networks. Method: An explanatory case study design was used when developing the DecideGuide. A secondary analysis focused on the data gathered from the participating people with dementia during the development stages: semi-structured interviews (n = 23), four focus group interviews (n = 18), usability tests (n = 3), and a field study (n = 4). Content analysis was applied to the data. Results: Four themes showed to be important regarding the participation experiences of involving people with dementia in research: valuable feedback on content and design of the DecideGuide, motivation to participate, perspectives of people with dementia and others about distress related to involvement, and time investment. Conclusions: People with dementia can give essential feedback and, therefore, their contribution is useful and valuable. Meaningful participation of people with dementia takes time that should be taken into account. It is important for people with dementia to be able to reciprocate the efforts others make and to feel of significance to others.Implications for Rehabilitation People with dementia can contribute meaningfully to the content and design and their perspective is essential for developing useful and user-friendly tools. Participating in research activities may contribute to social inclusion, empowerment, and quality of life of people with dementia.
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85014881127&origin=inward
UR - https://www.ncbi.nlm.nih.gov/pubmed/28286969
U2 - 10.1080/09638288.2017.1298162
DO - 10.1080/09638288.2017.1298162
M3 - Article
VL - 40
SP - 1410
EP - 1420
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
SN - 0963-8288
IS - 12
ER -