Multiple Sclerosis Data Alliance – A global multi-stakeholder collaboration to scale-up real world data research

Liesbet M. Peeters*, Tina Parciak, Dipak Kalra, Yves Moreau, Elisabeth Kasilingam, Pieter van Galen, Christoph Thalheim, Bernard Uitdehaag, Patrick Vermersch, Niels Hellings, Piet Stinissen, Bart Van Wijmeersch, Amin Ardeshirdavani, Ashkan Pirmani, Edward De Brouwer, Christian Robert Bauer, Dagmar Krefting, Stephanie Ribbe, Rod Middleton, Alexander StahmannGiancarlo Comi

*Corresponding author for this work

Research output: Contribution to journalLetterAcademicpeer-review

Abstract

The Multiple Sclerosis Data Alliance (MSDA), a global multi-stakeholder collaboration, is working to accelerate research insights for innovative care and treatment for people with multiple sclerosis (MS) through better use of real-world data (RWD). Despite the increasing reliance on RWD, challenges and limitations complicate the generation, collection, and use of these data. MSDA aims to tackle sociological and technical challenges arising with scaling up RWD, specifically focused on MS data. MSDA envisions a patient-centred data ecosystem in which all stakeholders contribute and use big data to co-create the innovations needed to advance timely treatment and care of people with MS.

Original languageEnglish
Article number102634
JournalMultiple Sclerosis and Related Disorders
Volume47
DOIs
Publication statusPublished - Jan 2021

Cite this