TY - JOUR
T1 - Non-invasive prenatal screening for trisomy 21
T2 - What women want and are willing to pay
AU - Verweij, E. Joanne
AU - Oepkes, Dick
AU - de Vries, Marieke
AU - van den Akker, M. Elske
AU - van den Akker, Eline S.
AU - de Boer, Marjon A.
N1 - Funding Information:
The study was supported by Foundation IDB .
PY - 2013/12
Y1 - 2013/12
N2 - Objective: To investigate the attitude among pregnant women regarding non-invasive prenatal testing (NIPT) for detecting trisomy 21 (T21) and to quantify their willingness to pay for NIPT. Methods: A questionnaire was administered to pregnant women who received counselling for first-trimester screening (FTS) in two hospitals and nine midwife practices in the Netherlands. Results: A total of 147 women completed the questionnaire, yielding a response rate of 43%. If NIPT for detecting T21 were available, 81% stated they would choose to have this test, and 57% of women who elected not to undergo FTS in their current pregnancy would perform NIPT if available. Willingness to pay for NIPT was correlated with age and income, but not education level. The price that participants were willing to pay for NIPT was similar to the current price for FTS. Conclusion: The pregnant women in our study had a positive attitude regarding NIPT for T21, and more than half of the women who rejected prenatal screening would receive NIPT if available. Practice implications: Due to the elimination of iatrogenic miscarriage, caregivers should be aware that informed decision-making can change with respect to prenatal screening with the introduction of NIPT.
AB - Objective: To investigate the attitude among pregnant women regarding non-invasive prenatal testing (NIPT) for detecting trisomy 21 (T21) and to quantify their willingness to pay for NIPT. Methods: A questionnaire was administered to pregnant women who received counselling for first-trimester screening (FTS) in two hospitals and nine midwife practices in the Netherlands. Results: A total of 147 women completed the questionnaire, yielding a response rate of 43%. If NIPT for detecting T21 were available, 81% stated they would choose to have this test, and 57% of women who elected not to undergo FTS in their current pregnancy would perform NIPT if available. Willingness to pay for NIPT was correlated with age and income, but not education level. The price that participants were willing to pay for NIPT was similar to the current price for FTS. Conclusion: The pregnant women in our study had a positive attitude regarding NIPT for T21, and more than half of the women who rejected prenatal screening would receive NIPT if available. Practice implications: Due to the elimination of iatrogenic miscarriage, caregivers should be aware that informed decision-making can change with respect to prenatal screening with the introduction of NIPT.
KW - Down syndrome
KW - Informed decision-making
KW - Non-invasive prenatal testing (NIPT)
KW - Non-invasive testing
KW - Prenatal screening
KW - Trisomy 21
KW - Willingness to pay
UR - http://www.scopus.com/inward/record.url?scp=84888372934&partnerID=8YFLogxK
U2 - 10.1016/j.pec.2013.08.006
DO - 10.1016/j.pec.2013.08.006
M3 - Article
C2 - 24011429
AN - SCOPUS:84888372934
SN - 0738-3991
VL - 93
SP - 641
EP - 645
JO - Patient Education and Counseling
JF - Patient Education and Counseling
IS - 3
ER -