Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

on behalf of PACE

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background: While the need for palliative care in long-term care facilities is growing, it is unknown whether palliative care in this setting is sufficiently developed. Aim: To describe and compare in six European countries palliative care provision in long-term care facilities and to assess associations between patient, facility and advance care planning factors and receipt and timing of palliative care. Design: Cross-sectional after-death survey regarding care provided to long-term care residents in Belgium, England, Finland, Italy, the Netherlands and Poland. Generalized estimating equations were used for analyses. Setting/participants: Nurses or care assistants who are most involved in care for the resident. Results: We included 1298 residents in 300 facilities, of whom a majority received palliative care in most countries (England: 72.6%–Belgium: 77.9%), except in Poland (14.0%) and Italy (32.1%). Palliative care typically started within 2 weeks before death and was often provided by the treating physician (England: 75%–the Netherlands: 98.8%). A palliative care specialist was frequently involved in Belgium and Poland (57.1% and 86.7%). Residents with cancer, dementia or a contact person in their record more often received palliative care, and it started earlier for residents with whom the nurse had spoken about treatments or the preferred course of care at the end of life. Conclusion: The late initiation of palliative care (especially when advance care planning is lacking) and palliative care for residents without cancer, dementia or closely involved relatives deserve attention in all countries. Diversity in palliative care organization might be related to different levels of its development.
Original languageEnglish
JournalPalliative Medicine
DOIs
Publication statusPublished - 2019

Cite this

@article{162e1c808b0b4ec6959d4b084a1a3fa0,
title = "Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)",
abstract = "Background: While the need for palliative care in long-term care facilities is growing, it is unknown whether palliative care in this setting is sufficiently developed. Aim: To describe and compare in six European countries palliative care provision in long-term care facilities and to assess associations between patient, facility and advance care planning factors and receipt and timing of palliative care. Design: Cross-sectional after-death survey regarding care provided to long-term care residents in Belgium, England, Finland, Italy, the Netherlands and Poland. Generalized estimating equations were used for analyses. Setting/participants: Nurses or care assistants who are most involved in care for the resident. Results: We included 1298 residents in 300 facilities, of whom a majority received palliative care in most countries (England: 72.6{\%}–Belgium: 77.9{\%}), except in Poland (14.0{\%}) and Italy (32.1{\%}). Palliative care typically started within 2 weeks before death and was often provided by the treating physician (England: 75{\%}–the Netherlands: 98.8{\%}). A palliative care specialist was frequently involved in Belgium and Poland (57.1{\%} and 86.7{\%}). Residents with cancer, dementia or a contact person in their record more often received palliative care, and it started earlier for residents with whom the nurse had spoken about treatments or the preferred course of care at the end of life. Conclusion: The late initiation of palliative care (especially when advance care planning is lacking) and palliative care for residents without cancer, dementia or closely involved relatives deserve attention in all countries. Diversity in palliative care organization might be related to different levels of its development.",
author = "{ten Koppel}, Maud and Onwuteaka-Philipsen, {Bregje D.} and {van den Block}, Lieve and Luc Deliens and Giovanni Gambassi and Heymans, {Martijn W.} and Marika Kyl{\"a}nen and Oosterveld-Vlug, {Mariska G.} and Pasman, {H. Roeline W.} and Sheila Payne and Tinne Smets and Katarzyna Szczerbińska and Twisk, {Jos W. R.} and {van der Steen}, {Jenny T.} and {on behalf of PACE} and {de Groote}, Zeger and Federica Mammarella and Martina Mercuri and Lara Pivodic and Agnieszka Pac and Paola Rossi and Ivan Segat and Eleanor Sowerby and Agata Stodolska and {van Hout}, Hein and Anne Wichmann and Eddy Adang and Paula Andreasen and Harriet Finne-Soveri and {Collingridge Moore}, Danni and Katherine Froggatt and Violetta Kijowska and {van den Noortgate}, Nele and Myrra Vernooij-Dassen",
year = "2019",
doi = "10.1177/0269216319861229",
language = "English",
journal = "Palliative Medicine",
issn = "0269-2163",
publisher = "SAGE Publications Ltd",

}

Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE). / on behalf of PACE.

In: Palliative Medicine, 2019.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

AU - ten Koppel, Maud

AU - Onwuteaka-Philipsen, Bregje D.

AU - van den Block, Lieve

AU - Deliens, Luc

AU - Gambassi, Giovanni

AU - Heymans, Martijn W.

AU - Kylänen, Marika

AU - Oosterveld-Vlug, Mariska G.

AU - Pasman, H. Roeline W.

AU - Payne, Sheila

AU - Smets, Tinne

AU - Szczerbińska, Katarzyna

AU - Twisk, Jos W. R.

AU - van der Steen, Jenny T.

AU - on behalf of PACE

AU - de Groote, Zeger

AU - Mammarella, Federica

AU - Mercuri, Martina

AU - Pivodic, Lara

AU - Pac, Agnieszka

AU - Rossi, Paola

AU - Segat, Ivan

AU - Sowerby, Eleanor

AU - Stodolska, Agata

AU - van Hout, Hein

AU - Wichmann, Anne

AU - Adang, Eddy

AU - Andreasen, Paula

AU - Finne-Soveri, Harriet

AU - Collingridge Moore, Danni

AU - Froggatt, Katherine

AU - Kijowska, Violetta

AU - van den Noortgate, Nele

AU - Vernooij-Dassen, Myrra

PY - 2019

Y1 - 2019

N2 - Background: While the need for palliative care in long-term care facilities is growing, it is unknown whether palliative care in this setting is sufficiently developed. Aim: To describe and compare in six European countries palliative care provision in long-term care facilities and to assess associations between patient, facility and advance care planning factors and receipt and timing of palliative care. Design: Cross-sectional after-death survey regarding care provided to long-term care residents in Belgium, England, Finland, Italy, the Netherlands and Poland. Generalized estimating equations were used for analyses. Setting/participants: Nurses or care assistants who are most involved in care for the resident. Results: We included 1298 residents in 300 facilities, of whom a majority received palliative care in most countries (England: 72.6%–Belgium: 77.9%), except in Poland (14.0%) and Italy (32.1%). Palliative care typically started within 2 weeks before death and was often provided by the treating physician (England: 75%–the Netherlands: 98.8%). A palliative care specialist was frequently involved in Belgium and Poland (57.1% and 86.7%). Residents with cancer, dementia or a contact person in their record more often received palliative care, and it started earlier for residents with whom the nurse had spoken about treatments or the preferred course of care at the end of life. Conclusion: The late initiation of palliative care (especially when advance care planning is lacking) and palliative care for residents without cancer, dementia or closely involved relatives deserve attention in all countries. Diversity in palliative care organization might be related to different levels of its development.

AB - Background: While the need for palliative care in long-term care facilities is growing, it is unknown whether palliative care in this setting is sufficiently developed. Aim: To describe and compare in six European countries palliative care provision in long-term care facilities and to assess associations between patient, facility and advance care planning factors and receipt and timing of palliative care. Design: Cross-sectional after-death survey regarding care provided to long-term care residents in Belgium, England, Finland, Italy, the Netherlands and Poland. Generalized estimating equations were used for analyses. Setting/participants: Nurses or care assistants who are most involved in care for the resident. Results: We included 1298 residents in 300 facilities, of whom a majority received palliative care in most countries (England: 72.6%–Belgium: 77.9%), except in Poland (14.0%) and Italy (32.1%). Palliative care typically started within 2 weeks before death and was often provided by the treating physician (England: 75%–the Netherlands: 98.8%). A palliative care specialist was frequently involved in Belgium and Poland (57.1% and 86.7%). Residents with cancer, dementia or a contact person in their record more often received palliative care, and it started earlier for residents with whom the nurse had spoken about treatments or the preferred course of care at the end of life. Conclusion: The late initiation of palliative care (especially when advance care planning is lacking) and palliative care for residents without cancer, dementia or closely involved relatives deserve attention in all countries. Diversity in palliative care organization might be related to different levels of its development.

UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85068615412&origin=inward

U2 - 10.1177/0269216319861229

DO - 10.1177/0269216319861229

M3 - Article

JO - Palliative Medicine

JF - Palliative Medicine

SN - 0269-2163

ER -