TY - JOUR
T1 - Patients as partners in a health research agenda setting
T2 - The feasibility of a participatory methodology
AU - Abma, Tineke A.
PY - 2006/12/1
Y1 - 2006/12/1
N2 - This article deals with the participation of patients in setting the agenda of health research that potentially directly affects their lives. The focus is on the communication problems encountered between lay people and medical professionals in developing a joint research agenda. The author argues that a participatory methodology can address these problems and thereby give patients "a say" in the types of health research that have the greatest chance of affecting them personally. The article uses a case example of people with spinal cord injuries participating in research to support the importance and value of patient participation. The case example also helps to rethink appropriate methodologies or at least to modify existing approaches by paying more attention to required social conditions, diversity, and the life world of patients to foster meaningful participation.
AB - This article deals with the participation of patients in setting the agenda of health research that potentially directly affects their lives. The focus is on the communication problems encountered between lay people and medical professionals in developing a joint research agenda. The author argues that a participatory methodology can address these problems and thereby give patients "a say" in the types of health research that have the greatest chance of affecting them personally. The article uses a case example of people with spinal cord injuries participating in research to support the importance and value of patient participation. The case example also helps to rethink appropriate methodologies or at least to modify existing approaches by paying more attention to required social conditions, diversity, and the life world of patients to foster meaningful participation.
KW - Conceptualizations of participation
KW - Dialogue
KW - Experiential knowledge
KW - Participatory methodologies
KW - Patient participation
UR - http://www.scopus.com/inward/record.url?scp=33750717204&partnerID=8YFLogxK
U2 - 10.1177/0163278706293406
DO - 10.1177/0163278706293406
M3 - Article
C2 - 17102064
AN - SCOPUS:33750717204
VL - 29
SP - 424
EP - 439
JO - Evaluation and the Health Professions
JF - Evaluation and the Health Professions
SN - 0163-2787
IS - 4
ER -