Abstract
| Original language | English |
|---|---|
| Journal | International Psychogeriatrics |
| DOIs | |
| Publication status | Published - 2019 |
Cite this
}
Self-management and social participation in community-dwelling people with mild dementia: A review of measuring instruments. / Mangiaracina, Floriana; Meiland, Franka; Kerkhof, Yvonne; Orrell, Martin; Graff, Maud; Dröes, Rose-Marie.
In: International Psychogeriatrics, 2019.Research output: Contribution to journal › Review article › Academic › peer-review
TY - JOUR
T1 - Self-management and social participation in community-dwelling people with mild dementia: A review of measuring instruments
AU - Mangiaracina, Floriana
AU - Meiland, Franka
AU - Kerkhof, Yvonne
AU - Orrell, Martin
AU - Graff, Maud
AU - Dröes, Rose-Marie
PY - 2019
Y1 - 2019
N2 - Background:In order to evaluate interventions promoting social health in people with dementia it is essential to have reliable and valid measures. The present review aims to provide an overview of available instruments for the assessment of two domains of social health in community-dwelling people with mild dementia, i.e., the ability to manage life with some degree of independence (self-management) and participation in social activities.Methods:An electronic search was conducted in the following databases: PubMed, CINAHL, and PsycINFO. Characteristics of the instruments, feasibility and psychometric properties of the instruments included are reported on.Results:We identified eight instruments measuring aspects of self-management and three instruments measuring social participation. Validity and reliability of self-management instruments varied between moderate and good. Little information was found on the psychometric properties of the instruments for social participation. In general, feasibility and responsiveness data regarding application in community-dwelling people with dementia were scarce for both types of instruments.Conclusions:Future research into assessment tools for social health should focus on the development of instruments for self-management that also cover the areas of coping with and adapting to the emotional consequences of the disease; instruments for social participation covering the involvement in social interactions that are experienced as meaningful by the person; and on the psychometric properties and responsiveness of instruments. More attention should also be given to the feasibility (ease of use) of these instruments for people with mild dementia, professionals, and researchers.
AB - Background:In order to evaluate interventions promoting social health in people with dementia it is essential to have reliable and valid measures. The present review aims to provide an overview of available instruments for the assessment of two domains of social health in community-dwelling people with mild dementia, i.e., the ability to manage life with some degree of independence (self-management) and participation in social activities.Methods:An electronic search was conducted in the following databases: PubMed, CINAHL, and PsycINFO. Characteristics of the instruments, feasibility and psychometric properties of the instruments included are reported on.Results:We identified eight instruments measuring aspects of self-management and three instruments measuring social participation. Validity and reliability of self-management instruments varied between moderate and good. Little information was found on the psychometric properties of the instruments for social participation. In general, feasibility and responsiveness data regarding application in community-dwelling people with dementia were scarce for both types of instruments.Conclusions:Future research into assessment tools for social health should focus on the development of instruments for self-management that also cover the areas of coping with and adapting to the emotional consequences of the disease; instruments for social participation covering the involvement in social interactions that are experienced as meaningful by the person; and on the psychometric properties and responsiveness of instruments. More attention should also be given to the feasibility (ease of use) of these instruments for people with mild dementia, professionals, and researchers.
UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85061273839&origin=inward
UR - https://www.ncbi.nlm.nih.gov/pubmed/30724149
U2 - 10.1017/S1041610218001709
DO - 10.1017/S1041610218001709
M3 - Review article
JO - Psychogeriatrics
JF - Psychogeriatrics
SN - 1041-6102
ER -