Self-management and social participation in community-dwelling people with mild dementia: A review of measuring instruments

Floriana Mangiaracina, Franka Meiland, Yvonne Kerkhof, Martin Orrell, Maud Graff, Rose-Marie Dröes

Research output: Contribution to journalReview articleAcademicpeer-review

Abstract

Background:In order to evaluate interventions promoting social health in people with dementia it is essential to have reliable and valid measures. The present review aims to provide an overview of available instruments for the assessment of two domains of social health in community-dwelling people with mild dementia, i.e., the ability to manage life with some degree of independence (self-management) and participation in social activities.Methods:An electronic search was conducted in the following databases: PubMed, CINAHL, and PsycINFO. Characteristics of the instruments, feasibility and psychometric properties of the instruments included are reported on.Results:We identified eight instruments measuring aspects of self-management and three instruments measuring social participation. Validity and reliability of self-management instruments varied between moderate and good. Little information was found on the psychometric properties of the instruments for social participation. In general, feasibility and responsiveness data regarding application in community-dwelling people with dementia were scarce for both types of instruments.Conclusions:Future research into assessment tools for social health should focus on the development of instruments for self-management that also cover the areas of coping with and adapting to the emotional consequences of the disease; instruments for social participation covering the involvement in social interactions that are experienced as meaningful by the person; and on the psychometric properties and responsiveness of instruments. More attention should also be given to the feasibility (ease of use) of these instruments for people with mild dementia, professionals, and researchers.
Original languageEnglish
JournalInternational Psychogeriatrics
DOIs
Publication statusPublished - 2019

Cite this

@article{9508b9bc5e8946949a0b6341aa3b4cb7,
title = "Self-management and social participation in community-dwelling people with mild dementia: A review of measuring instruments",
abstract = "Background:In order to evaluate interventions promoting social health in people with dementia it is essential to have reliable and valid measures. The present review aims to provide an overview of available instruments for the assessment of two domains of social health in community-dwelling people with mild dementia, i.e., the ability to manage life with some degree of independence (self-management) and participation in social activities.Methods:An electronic search was conducted in the following databases: PubMed, CINAHL, and PsycINFO. Characteristics of the instruments, feasibility and psychometric properties of the instruments included are reported on.Results:We identified eight instruments measuring aspects of self-management and three instruments measuring social participation. Validity and reliability of self-management instruments varied between moderate and good. Little information was found on the psychometric properties of the instruments for social participation. In general, feasibility and responsiveness data regarding application in community-dwelling people with dementia were scarce for both types of instruments.Conclusions:Future research into assessment tools for social health should focus on the development of instruments for self-management that also cover the areas of coping with and adapting to the emotional consequences of the disease; instruments for social participation covering the involvement in social interactions that are experienced as meaningful by the person; and on the psychometric properties and responsiveness of instruments. More attention should also be given to the feasibility (ease of use) of these instruments for people with mild dementia, professionals, and researchers.",
author = "Floriana Mangiaracina and Franka Meiland and Yvonne Kerkhof and Martin Orrell and Maud Graff and Rose-Marie Dr{\"o}es",
year = "2019",
doi = "10.1017/S1041610218001709",
language = "English",
journal = "Psychogeriatrics",
issn = "1041-6102",
publisher = "Cambridge University Press",

}

Self-management and social participation in community-dwelling people with mild dementia: A review of measuring instruments. / Mangiaracina, Floriana; Meiland, Franka; Kerkhof, Yvonne; Orrell, Martin; Graff, Maud; Dröes, Rose-Marie.

In: International Psychogeriatrics, 2019.

Research output: Contribution to journalReview articleAcademicpeer-review

TY - JOUR

T1 - Self-management and social participation in community-dwelling people with mild dementia: A review of measuring instruments

AU - Mangiaracina, Floriana

AU - Meiland, Franka

AU - Kerkhof, Yvonne

AU - Orrell, Martin

AU - Graff, Maud

AU - Dröes, Rose-Marie

PY - 2019

Y1 - 2019

N2 - Background:In order to evaluate interventions promoting social health in people with dementia it is essential to have reliable and valid measures. The present review aims to provide an overview of available instruments for the assessment of two domains of social health in community-dwelling people with mild dementia, i.e., the ability to manage life with some degree of independence (self-management) and participation in social activities.Methods:An electronic search was conducted in the following databases: PubMed, CINAHL, and PsycINFO. Characteristics of the instruments, feasibility and psychometric properties of the instruments included are reported on.Results:We identified eight instruments measuring aspects of self-management and three instruments measuring social participation. Validity and reliability of self-management instruments varied between moderate and good. Little information was found on the psychometric properties of the instruments for social participation. In general, feasibility and responsiveness data regarding application in community-dwelling people with dementia were scarce for both types of instruments.Conclusions:Future research into assessment tools for social health should focus on the development of instruments for self-management that also cover the areas of coping with and adapting to the emotional consequences of the disease; instruments for social participation covering the involvement in social interactions that are experienced as meaningful by the person; and on the psychometric properties and responsiveness of instruments. More attention should also be given to the feasibility (ease of use) of these instruments for people with mild dementia, professionals, and researchers.

AB - Background:In order to evaluate interventions promoting social health in people with dementia it is essential to have reliable and valid measures. The present review aims to provide an overview of available instruments for the assessment of two domains of social health in community-dwelling people with mild dementia, i.e., the ability to manage life with some degree of independence (self-management) and participation in social activities.Methods:An electronic search was conducted in the following databases: PubMed, CINAHL, and PsycINFO. Characteristics of the instruments, feasibility and psychometric properties of the instruments included are reported on.Results:We identified eight instruments measuring aspects of self-management and three instruments measuring social participation. Validity and reliability of self-management instruments varied between moderate and good. Little information was found on the psychometric properties of the instruments for social participation. In general, feasibility and responsiveness data regarding application in community-dwelling people with dementia were scarce for both types of instruments.Conclusions:Future research into assessment tools for social health should focus on the development of instruments for self-management that also cover the areas of coping with and adapting to the emotional consequences of the disease; instruments for social participation covering the involvement in social interactions that are experienced as meaningful by the person; and on the psychometric properties and responsiveness of instruments. More attention should also be given to the feasibility (ease of use) of these instruments for people with mild dementia, professionals, and researchers.

UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85061273839&origin=inward

UR - https://www.ncbi.nlm.nih.gov/pubmed/30724149

U2 - 10.1017/S1041610218001709

DO - 10.1017/S1041610218001709

M3 - Review article

JO - Psychogeriatrics

JF - Psychogeriatrics

SN - 1041-6102

ER -