Sexuality in Adults with Differences/Disorders of Sex Development (DSD): Findings from the dsd-LIFE Study

Baudewijntje P. C. Kreukels, Peggy T. Cohen-Kettenis, Robert Roehle, Tim C. van de Grift, Jolanta Slowikowska-Hilczer, Hedi Claahsen-van der Grinten, Angelica Lindén Hirschberg, Annelou L. C. de Vries, Nicole Reisch, Claire Bouvattier, Anna Nordenström, Ute Thyen, Birgit Köhler, Annelou de Vries, Wiebke Arlt, Claudia Wiesemann, Aude Brac de la Perriere, Charles Sultan, Francoise Paris, Annette Richter-Unruh & 3 others Catherine Pienkowski, Maria Szarras-Czapnik, by On behalf of the dsd-LIFE group

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

For various reasons, sexuality of individuals with differences/disorders of sex development (DSD) may be affected. The aim of the study was to describe sexual activity, satisfaction with sex life, satisfaction with genital function, and sexual problems in people with different DSD conditions. Data were collected from 1,040 participants in Europe. Many people with a variety of DSD conditions do not appear to be satisfied with their sex life, experience a variety of sexual problems, and are less sexually active than the general population; therefore sexuality should be explicitly addressed in the care of people with DSD.
Original languageEnglish
Pages (from-to)688-705
Number of pages18
JournalJournal of Sex and Marital Therapy
Volume45
Issue number8
DOIs
Publication statusPublished - 17 Nov 2019

Cite this

Kreukels, Baudewijntje P. C. ; Cohen-Kettenis, Peggy T. ; Roehle, Robert ; van de Grift, Tim C. ; Slowikowska-Hilczer, Jolanta ; Claahsen-van der Grinten, Hedi ; Lindén Hirschberg, Angelica ; de Vries, Annelou L. C. ; Reisch, Nicole ; Bouvattier, Claire ; Nordenström, Anna ; Thyen, Ute ; Köhler, Birgit ; de Vries, Annelou ; Arlt, Wiebke ; Wiesemann, Claudia ; de la Perriere, Aude Brac ; Sultan, Charles ; Paris, Francoise ; Richter-Unruh, Annette ; Pienkowski, Catherine ; Szarras-Czapnik, Maria ; by On behalf of the dsd-LIFE group. / Sexuality in Adults with Differences/Disorders of Sex Development (DSD): Findings from the dsd-LIFE Study. In: Journal of Sex and Marital Therapy. 2019 ; Vol. 45, No. 8. pp. 688-705.
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title = "Sexuality in Adults with Differences/Disorders of Sex Development (DSD): Findings from the dsd-LIFE Study",
abstract = "For various reasons, sexuality of individuals with differences/disorders of sex development (DSD) may be affected. The aim of the study was to describe sexual activity, satisfaction with sex life, satisfaction with genital function, and sexual problems in people with different DSD conditions. Data were collected from 1,040 participants in Europe. Many people with a variety of DSD conditions do not appear to be satisfied with their sex life, experience a variety of sexual problems, and are less sexually active than the general population; therefore sexuality should be explicitly addressed in the care of people with DSD.",
author = "Kreukels, {Baudewijntje P. C.} and Cohen-Kettenis, {Peggy T.} and Robert Roehle and {van de Grift}, {Tim C.} and Jolanta Slowikowska-Hilczer and {Claahsen-van der Grinten}, Hedi and {Lind{\'e}n Hirschberg}, Angelica and {de Vries}, {Annelou L. C.} and Nicole Reisch and Claire Bouvattier and Anna Nordenstr{\"o}m and Ute Thyen and Birgit K{\"o}hler and {de Vries}, Annelou and Wiebke Arlt and Claudia Wiesemann and {de la Perriere}, {Aude Brac} and Charles Sultan and Francoise Paris and Annette Richter-Unruh and Catherine Pienkowski and Maria Szarras-Czapnik and {by On behalf of the dsd-LIFE group}",
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Kreukels, BPC, Cohen-Kettenis, PT, Roehle, R, van de Grift, TC, Slowikowska-Hilczer, J, Claahsen-van der Grinten, H, Lindén Hirschberg, A, de Vries, ALC, Reisch, N, Bouvattier, C, Nordenström, A, Thyen, U, Köhler, B, de Vries, A, Arlt, W, Wiesemann, C, de la Perriere, AB, Sultan, C, Paris, F, Richter-Unruh, A, Pienkowski, C, Szarras-Czapnik, M & by On behalf of the dsd-LIFE group 2019, 'Sexuality in Adults with Differences/Disorders of Sex Development (DSD): Findings from the dsd-LIFE Study' Journal of Sex and Marital Therapy, vol. 45, no. 8, pp. 688-705. https://doi.org/10.1080/0092623X.2019.1610123

Sexuality in Adults with Differences/Disorders of Sex Development (DSD): Findings from the dsd-LIFE Study. / Kreukels, Baudewijntje P. C.; Cohen-Kettenis, Peggy T.; Roehle, Robert; van de Grift, Tim C.; Slowikowska-Hilczer, Jolanta; Claahsen-van der Grinten, Hedi; Lindén Hirschberg, Angelica; de Vries, Annelou L. C.; Reisch, Nicole; Bouvattier, Claire; Nordenström, Anna; Thyen, Ute; Köhler, Birgit; de Vries, Annelou; Arlt, Wiebke; Wiesemann, Claudia; de la Perriere, Aude Brac; Sultan, Charles; Paris, Francoise; Richter-Unruh, Annette; Pienkowski, Catherine; Szarras-Czapnik, Maria; by On behalf of the dsd-LIFE group.

In: Journal of Sex and Marital Therapy, Vol. 45, No. 8, 17.11.2019, p. 688-705.

Research output: Contribution to journalArticleAcademicpeer-review

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AU - de la Perriere, Aude Brac

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