Standards for the diagnosis and management of complex regional pain syndrome: Results of a European Pain Federation task force

Andreas Goebel, Chris Barker, Frank Birklein, Florian Brunner, Roberto Casale, Chris Eccleston, E. Eisenberg, Candy S. McCabe, G. Lorimer Moseley, R. Perez, Serge Perrot, Astrid Terkelsen, Ilona Thomassen, Andrzey Zyluk, Chris Wells

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background: Complex regional pain syndrome is a painful and disabling post-traumatic primary pain disorder. Acute and chronic complex regional pain syndrome (CRPS) are major clinical challenges. In Europe, progress is hampered by significant heterogeneity in clinical practice. We sought to establish standards for the diagnosis and management of CRPS. Methods: The European Pain Federation established a pan-European task force of experts in CRPS who followed a four-stage consensus challenge process to produce mandatory quality standards worded as grammatically imperative (must-do) statements. Results: We developed 17 standards in 8 areas of care. There are 2 standards in diagnosis, 1 in multidisciplinary care, 1 in assessment, 3 for care pathways, 1 in information and education, 4 in pain management, 3 in physical rehabilitation and 2 on distress management. The standards are presented and summarized, and their generation and consequences were discussed. Also presented are domains of practice for which no agreement on a standard could be reached. Areas of research needed to improve the validity and uptake of these standards are discussed. Conclusion: The European Pain Federation task force present 17 standards of the diagnosis and management of CRPS for use in Europe. These are considered achievable for most countries and aspirational for a minority of countries depending on their healthcare resource and structures. Significance: This position statement summarizes expert opinion on acceptable standards for CRPS care in Europe.
Original languageEnglish
JournalEuropean Journal of Pain (United Kingdom)
DOIs
Publication statusPublished - 2019

Cite this

Goebel, Andreas ; Barker, Chris ; Birklein, Frank ; Brunner, Florian ; Casale, Roberto ; Eccleston, Chris ; Eisenberg, E. ; McCabe, Candy S. ; Moseley, G. Lorimer ; Perez, R. ; Perrot, Serge ; Terkelsen, Astrid ; Thomassen, Ilona ; Zyluk, Andrzey ; Wells, Chris. / Standards for the diagnosis and management of complex regional pain syndrome: Results of a European Pain Federation task force. In: European Journal of Pain (United Kingdom). 2019.
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title = "Standards for the diagnosis and management of complex regional pain syndrome: Results of a European Pain Federation task force",
abstract = "Background: Complex regional pain syndrome is a painful and disabling post-traumatic primary pain disorder. Acute and chronic complex regional pain syndrome (CRPS) are major clinical challenges. In Europe, progress is hampered by significant heterogeneity in clinical practice. We sought to establish standards for the diagnosis and management of CRPS. Methods: The European Pain Federation established a pan-European task force of experts in CRPS who followed a four-stage consensus challenge process to produce mandatory quality standards worded as grammatically imperative (must-do) statements. Results: We developed 17 standards in 8 areas of care. There are 2 standards in diagnosis, 1 in multidisciplinary care, 1 in assessment, 3 for care pathways, 1 in information and education, 4 in pain management, 3 in physical rehabilitation and 2 on distress management. The standards are presented and summarized, and their generation and consequences were discussed. Also presented are domains of practice for which no agreement on a standard could be reached. Areas of research needed to improve the validity and uptake of these standards are discussed. Conclusion: The European Pain Federation task force present 17 standards of the diagnosis and management of CRPS for use in Europe. These are considered achievable for most countries and aspirational for a minority of countries depending on their healthcare resource and structures. Significance: This position statement summarizes expert opinion on acceptable standards for CRPS care in Europe.",
author = "Andreas Goebel and Chris Barker and Frank Birklein and Florian Brunner and Roberto Casale and Chris Eccleston and E. Eisenberg and McCabe, {Candy S.} and Moseley, {G. Lorimer} and R. Perez and Serge Perrot and Astrid Terkelsen and Ilona Thomassen and Andrzey Zyluk and Chris Wells",
year = "2019",
doi = "10.1002/ejp.1362",
language = "English",
journal = "European Journal of Pain",
issn = "1090-3801",
publisher = "Wiley-Blackwell",

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Goebel, A, Barker, C, Birklein, F, Brunner, F, Casale, R, Eccleston, C, Eisenberg, E, McCabe, CS, Moseley, GL, Perez, R, Perrot, S, Terkelsen, A, Thomassen, I, Zyluk, A & Wells, C 2019, 'Standards for the diagnosis and management of complex regional pain syndrome: Results of a European Pain Federation task force' European Journal of Pain (United Kingdom). https://doi.org/10.1002/ejp.1362

Standards for the diagnosis and management of complex regional pain syndrome: Results of a European Pain Federation task force. / Goebel, Andreas; Barker, Chris; Birklein, Frank; Brunner, Florian; Casale, Roberto; Eccleston, Chris; Eisenberg, E.; McCabe, Candy S.; Moseley, G. Lorimer; Perez, R.; Perrot, Serge; Terkelsen, Astrid; Thomassen, Ilona; Zyluk, Andrzey; Wells, Chris.

In: European Journal of Pain (United Kingdom), 2019.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - Standards for the diagnosis and management of complex regional pain syndrome: Results of a European Pain Federation task force

AU - Goebel, Andreas

AU - Barker, Chris

AU - Birklein, Frank

AU - Brunner, Florian

AU - Casale, Roberto

AU - Eccleston, Chris

AU - Eisenberg, E.

AU - McCabe, Candy S.

AU - Moseley, G. Lorimer

AU - Perez, R.

AU - Perrot, Serge

AU - Terkelsen, Astrid

AU - Thomassen, Ilona

AU - Zyluk, Andrzey

AU - Wells, Chris

PY - 2019

Y1 - 2019

N2 - Background: Complex regional pain syndrome is a painful and disabling post-traumatic primary pain disorder. Acute and chronic complex regional pain syndrome (CRPS) are major clinical challenges. In Europe, progress is hampered by significant heterogeneity in clinical practice. We sought to establish standards for the diagnosis and management of CRPS. Methods: The European Pain Federation established a pan-European task force of experts in CRPS who followed a four-stage consensus challenge process to produce mandatory quality standards worded as grammatically imperative (must-do) statements. Results: We developed 17 standards in 8 areas of care. There are 2 standards in diagnosis, 1 in multidisciplinary care, 1 in assessment, 3 for care pathways, 1 in information and education, 4 in pain management, 3 in physical rehabilitation and 2 on distress management. The standards are presented and summarized, and their generation and consequences were discussed. Also presented are domains of practice for which no agreement on a standard could be reached. Areas of research needed to improve the validity and uptake of these standards are discussed. Conclusion: The European Pain Federation task force present 17 standards of the diagnosis and management of CRPS for use in Europe. These are considered achievable for most countries and aspirational for a minority of countries depending on their healthcare resource and structures. Significance: This position statement summarizes expert opinion on acceptable standards for CRPS care in Europe.

AB - Background: Complex regional pain syndrome is a painful and disabling post-traumatic primary pain disorder. Acute and chronic complex regional pain syndrome (CRPS) are major clinical challenges. In Europe, progress is hampered by significant heterogeneity in clinical practice. We sought to establish standards for the diagnosis and management of CRPS. Methods: The European Pain Federation established a pan-European task force of experts in CRPS who followed a four-stage consensus challenge process to produce mandatory quality standards worded as grammatically imperative (must-do) statements. Results: We developed 17 standards in 8 areas of care. There are 2 standards in diagnosis, 1 in multidisciplinary care, 1 in assessment, 3 for care pathways, 1 in information and education, 4 in pain management, 3 in physical rehabilitation and 2 on distress management. The standards are presented and summarized, and their generation and consequences were discussed. Also presented are domains of practice for which no agreement on a standard could be reached. Areas of research needed to improve the validity and uptake of these standards are discussed. Conclusion: The European Pain Federation task force present 17 standards of the diagnosis and management of CRPS for use in Europe. These are considered achievable for most countries and aspirational for a minority of countries depending on their healthcare resource and structures. Significance: This position statement summarizes expert opinion on acceptable standards for CRPS care in Europe.

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UR - https://www.ncbi.nlm.nih.gov/pubmed/30620109

U2 - 10.1002/ejp.1362

DO - 10.1002/ejp.1362

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JO - European Journal of Pain

JF - European Journal of Pain

SN - 1090-3801

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