The BETER survivorship care initiative for Hodgkin lymphoma; Tailored survivorship care for late effects of treatment

Nicky Dekker, Mars B. Van'T Veer, Berthe M.P. Aleman, Flora E. Van Leeuwen, John M.M. Raemaekers, Michael Schaapveld, Annemieke Opstal-Van Winden, Jan Paul De Boer, Cherita Sombroek, Philip Poortmans, Richard Van Der Maazen, P. J.Elly Lugtenburg, Cecile Janus, Ed Noordijk, A. D.G.Stijn Krol, Laurien Daniels, Josée Zijlstra, Otto Meijer, Eefke Petersen, Denise ButerRoel De Weijer, Judith Roesink, J. C.Hanneke Kluin-Nelemans, Gustaaf Van Imhoff, Floriske De Vries, Max Beijert, Marie José Kersten, Foppe Oldenburger, Edith Dieleman, Harry Schouten, Jacques Borger, Lien Van De Voorde, Karijn Verschueren, Maaike Schippers, Bernard Verbeeten, Francisca Ong, Lucille Dorresteijn, Erik Schimmel, Paul Bouma, Karin Muller, Marnix Lybeert, Ellen Dompeling, Annelies Manenschijn, J. Hanneke Vos-Westerman, Daphne Van Kampen, Michel Dielwart, Ward Posthuma, Lara Böhmer, Liane Te Boome, Hein Visser

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Abstract

The Dutch BETER consortium has established a national care infrastructure for Hodgkin lymphoma survivors. 'BETER' [the Dutch word for 'better'] stands for Better care after Hodgkin lymphoma (HL): Evaluation of longterm Treatment Effects and screening Recommendations. The survivorship care focuses on longterm effects of HL treatment. Over 10,000 HL survivors who were treated in the period spanning 19652008 have been identified. As part of the survivorship care initiative, specific BETER outpatient clinics have been set up. A dedicated website, www.beternahodgkin.nl, provides HL survivors with relevant information. The stakeholders of the BETER survivorship care programme aim to achieve an improved healthy life expectancy for patients treated for HL.
Original languageEnglish
JournalNederlands Tijdschrift voor Geneeskunde
Volume160
Issue number5
Publication statusPublished - 1 Jan 2016

Cite this

Dekker, N., Van'T Veer, M. B., Aleman, B. M. P., Van Leeuwen, F. E., Raemaekers, J. M. M., Schaapveld, M., ... Visser, H. (2016). The BETER survivorship care initiative for Hodgkin lymphoma; Tailored survivorship care for late effects of treatment. Nederlands Tijdschrift voor Geneeskunde, 160(5).