The care-giving stress process

Anne Margriet Pot*

*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceedingChapterAcademicpeer-review


Until the 1980s, carers of relatives with dementia were so-called ‘hidden victims’ of Alzheimer’s disease. The attention of clinicians and researchers was merely directed at persons with dementia, and not at their family carers. Zarit and colleagues were among the first researchers who illuminated what they called the burden of providing care to a relative with dementia (Zarit et al. 1980). They developed a scale, ‘The Burden Interview’, covering areas most frequently mentioned by carers as problems, including carers’ health, psychological wellbeing, finances, social life and the relationship between the carer and relative with dementia. Results of their early study showed that persons with dementia receiving more visits from children (other than the primary carer), grandchildren and siblings had carers who reported less burden.

Original languageEnglish
Title of host publicationCare-Giving in Dementia V3
Subtitle of host publicationResearch and Applications Volume 3
PublisherTaylor and Francis
Number of pages20
ISBN (Electronic)9781135479732
Publication statusPublished - 1 Jan 2004

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