The challenges of the expanded availability of genomic information: an agenda-setting paper

Pascal Borry; Heidi Beate Bentzen; Isabelle Budin-Ljosne; Martina C. Cornel; Heidi Carmen Howard; Oliver Feeney; Leigh Jackson; Deborah Mascalzoni; Alvaro Mendes; Borut Peterlin; Brigida Riso; Mahsa Shabani; Heather Skirton; Sigrid Sterckx; Danya Vears; Matthias Wjst; Heike Felzmann

doi:10.1007/s12687-017-0331-7

The challenges of the expanded availability of genomic information: an agenda-setting paper

Pascal Borry, Heidi Beate Bentzen, Isabelle Budin-Ljosne, Martina C. Cornel, Heidi Carmen Howard, Oliver Feeney, Leigh Jackson, Deborah Mascalzoni, Alvaro Mendes, Borut Peterlin, Brigida Riso, Mahsa Shabani, Heather Skirton, Sigrid Sterckx, Danya Vears, Matthias Wjst, Heike Felzmann

Research output: Contribution to journal › Article › Academic › peer-review

Original language	English
Pages (from-to)	103-116
Journal	Journal of Community Genetics
Volume	9
Issue number	2
DOIs	https://doi.org/10.1007/s12687-017-0331-7
Publication status	Published - Apr 2018

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10.1007/s12687-017-0331-7

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Borry, P., Bentzen, H. B., Budin-Ljosne, I., Cornel, M. C., Howard, H. C., Feeney, O., Jackson, L., Mascalzoni, D., Mendes, A., Peterlin, B., Riso, B., Shabani, M., Skirton, H., Sterckx, S., Vears, D., Wjst, M., & Felzmann, H. (2018). The challenges of the expanded availability of genomic information: an agenda-setting paper. Journal of Community Genetics, 9(2), 103-116. https://doi.org/10.1007/s12687-017-0331-7

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title = "The challenges of the expanded availability of genomic information: an agenda-setting paper",

keywords = "Genomics, Clinical and research genomic data, Return of results, Data sharing, Informed consent, Direct-to-consumer genetic testing",

author = "Pascal Borry and Bentzen, {Heidi Beate} and Isabelle Budin-Ljosne and Cornel, {Martina C.} and Howard, {Heidi Carmen} and Oliver Feeney and Leigh Jackson and Deborah Mascalzoni and Alvaro Mendes and Borut Peterlin and Brigida Riso and Mahsa Shabani and Heather Skirton and Sigrid Sterckx and Danya Vears and Matthias Wjst and Heike Felzmann",

year = "2018",

month = apr,

doi = "10.1007/s12687-017-0331-7",

language = "English",

volume = "9",

pages = "103--116",

journal = "Journal of Community Genetics",

issn = "1868-310X",

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Borry, P, Bentzen, HB, Budin-Ljosne, I, Cornel, MC, Howard, HC, Feeney, O, Jackson, L, Mascalzoni, D, Mendes, A, Peterlin, B, Riso, B, Shabani, M, Skirton, H, Sterckx, S, Vears, D, Wjst, M & Felzmann, H 2018, 'The challenges of the expanded availability of genomic information: an agenda-setting paper', Journal of Community Genetics, vol. 9, no. 2, pp. 103-116. https://doi.org/10.1007/s12687-017-0331-7

TY - JOUR

T1 - The challenges of the expanded availability of genomic information: an agenda-setting paper

AU - Borry, Pascal

AU - Bentzen, Heidi Beate

AU - Budin-Ljosne, Isabelle

AU - Cornel, Martina C.

AU - Howard, Heidi Carmen

AU - Feeney, Oliver

AU - Jackson, Leigh

AU - Mascalzoni, Deborah

AU - Mendes, Alvaro

AU - Peterlin, Borut

AU - Riso, Brigida

AU - Shabani, Mahsa

AU - Skirton, Heather

AU - Sterckx, Sigrid

AU - Vears, Danya

AU - Wjst, Matthias

AU - Felzmann, Heike

PY - 2018/4

Y1 - 2018/4

KW - Genomics

KW - Clinical and research genomic data

KW - Return of results

KW - Data sharing

KW - Informed consent

KW - Direct-to-consumer genetic testing

U2 - 10.1007/s12687-017-0331-7

DO - 10.1007/s12687-017-0331-7

M3 - Article

C2 - 28952070

VL - 9

SP - 103

EP - 116

JO - Journal of Community Genetics

JF - Journal of Community Genetics

SN - 1868-310X

IS - 2

ER -