The MOPEAD project: Advancing patient engagement for the detection of “hidden” undiagnosed cases of Alzheimer's disease in the community

Octavio Rodríguez-Gómez, Adrián Rodrigo, F. tima Iradier, Miguel A. Santos-Santos, Hans Hundemer, Andreea Ciudin, Lena Sannemann, Marissa Zwan, Bridget Glaysher, Anders Wimo, Jaka Bonn, Gunilla Johansson, Isabel Rodriguez, Montse Alegret, Dianne Gove, Susana Pinó, Paloma Trigueros, Miia Kivipelto, Brandy Mathews, Antonio CiudadDaniel Ferreira, Christophe Bintener, Miren Gurruchaga, Eric Westman, Mark Belger, Sergi Valero, Peggy Maguire, David Krivec, Milica Kramberger, Rafael Simó, Inmaculada P. rez Garro, Pieter Jelle Visser, Annette Dumas, Jean Georges, Frank Jessen, Bengt Winblad, Craig Shering, Neil Stewart, Laura Campo, Mercè Boada, MOPEAD Consortium

Research output: Contribution to journalReview articleAcademicpeer-review

Abstract

In most, if not all health systems, dementia is underdiagnosed, and when diagnosis occurs, it is typically at a relatively late stage in the disease process despite mounting evidence showing that a timely diagnosis would result in numerous benefits for patients, families, and society. Moving toward earlier diagnoses in Alzheimer's disease (AD) requires a conscientious and collective effort to implement a global strategy addressing the multiple causes hindering patient engagement at different levels of society. This article describes the design of the Models of Patient Engagement for Alzheimer's Disease project, an ongoing EU-funded public-private multinational initiative that will compare four innovative patient engagement strategies across five European countries regarding their ability to identify individuals with prodromal AD and mild AD dementia, which are “hidden” in their communities and traditionally not found in the typical memory clinic setting. The strategies include an online AD citizen science platform, an open house initiative at the memory clinics, and patient engagement at primary care and diabetologist clinics.
Original languageEnglish
Pages (from-to)828-839
JournalAlzheimer's and Dementia
Volume15
Issue number6
DOIs
Publication statusPublished - 1 Jun 2019

Cite this

Rodríguez-Gómez, O., Rodrigo, A., Iradier, F. T., Santos-Santos, M. A., Hundemer, H., Ciudin, A., ... MOPEAD Consortium (2019). The MOPEAD project: Advancing patient engagement for the detection of “hidden” undiagnosed cases of Alzheimer's disease in the community. Alzheimer's and Dementia, 15(6), 828-839. https://doi.org/10.1016/j.jalz.2019.02.003