The MOPEAD project: Advancing patient engagement for the detection of “hidden” undiagnosed cases of Alzheimer's disease in the community

Octavio Rodríguez-Gómez, Adrián Rodrigo, F. tima Iradier, Miguel A. Santos-Santos, Hans Hundemer, Andreea Ciudin, Lena Sannemann, Marissa Zwan, Bridget Glaysher, Anders Wimo, Jaka Bonn, Gunilla Johansson, Isabel Rodriguez, Montse Alegret, Dianne Gove, Susana Pinó, Paloma Trigueros, Miia Kivipelto, Brandy Mathews, Antonio Ciudad & 21 others Daniel Ferreira, Christophe Bintener, Miren Gurruchaga, Eric Westman, Mark Belger, Sergi Valero, Peggy Maguire, David Krivec, Milica Kramberger, Rafael Simó, Inmaculada P. rez Garro, Pieter Jelle Visser, Annette Dumas, Jean Georges, Frank Jessen, Bengt Winblad, Craig Shering, Neil Stewart, Laura Campo, Mercè Boada, MOPEAD Consortium

Research output: Contribution to journalReview articleAcademicpeer-review

Abstract

In most, if not all health systems, dementia is underdiagnosed, and when diagnosis occurs, it is typically at a relatively late stage in the disease process despite mounting evidence showing that a timely diagnosis would result in numerous benefits for patients, families, and society. Moving toward earlier diagnoses in Alzheimer's disease (AD) requires a conscientious and collective effort to implement a global strategy addressing the multiple causes hindering patient engagement at different levels of society. This article describes the design of the Models of Patient Engagement for Alzheimer's Disease project, an ongoing EU-funded public-private multinational initiative that will compare four innovative patient engagement strategies across five European countries regarding their ability to identify individuals with prodromal AD and mild AD dementia, which are “hidden” in their communities and traditionally not found in the typical memory clinic setting. The strategies include an online AD citizen science platform, an open house initiative at the memory clinics, and patient engagement at primary care and diabetologist clinics.
Original languageEnglish
Pages (from-to)828-839
JournalAlzheimer's and Dementia
Volume15
Issue number6
DOIs
Publication statusPublished - 1 Jun 2019

Cite this

Rodríguez-Gómez, O., Rodrigo, A., Iradier, F. T., Santos-Santos, M. A., Hundemer, H., Ciudin, A., ... MOPEAD Consortium (2019). The MOPEAD project: Advancing patient engagement for the detection of “hidden” undiagnosed cases of Alzheimer's disease in the community. Alzheimer's and Dementia, 15(6), 828-839. https://doi.org/10.1016/j.jalz.2019.02.003
Rodríguez-Gómez, Octavio ; Rodrigo, Adrián ; Iradier, F. tima ; Santos-Santos, Miguel A. ; Hundemer, Hans ; Ciudin, Andreea ; Sannemann, Lena ; Zwan, Marissa ; Glaysher, Bridget ; Wimo, Anders ; Bonn, Jaka ; Johansson, Gunilla ; Rodriguez, Isabel ; Alegret, Montse ; Gove, Dianne ; Pinó, Susana ; Trigueros, Paloma ; Kivipelto, Miia ; Mathews, Brandy ; Ciudad, Antonio ; Ferreira, Daniel ; Bintener, Christophe ; Gurruchaga, Miren ; Westman, Eric ; Belger, Mark ; Valero, Sergi ; Maguire, Peggy ; Krivec, David ; Kramberger, Milica ; Simó, Rafael ; Garro, Inmaculada P. rez ; Visser, Pieter Jelle ; Dumas, Annette ; Georges, Jean ; Jessen, Frank ; Winblad, Bengt ; Shering, Craig ; Stewart, Neil ; Campo, Laura ; Boada, Mercè ; MOPEAD Consortium. / The MOPEAD project: Advancing patient engagement for the detection of “hidden” undiagnosed cases of Alzheimer's disease in the community. In: Alzheimer's and Dementia. 2019 ; Vol. 15, No. 6. pp. 828-839.
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abstract = "In most, if not all health systems, dementia is underdiagnosed, and when diagnosis occurs, it is typically at a relatively late stage in the disease process despite mounting evidence showing that a timely diagnosis would result in numerous benefits for patients, families, and society. Moving toward earlier diagnoses in Alzheimer's disease (AD) requires a conscientious and collective effort to implement a global strategy addressing the multiple causes hindering patient engagement at different levels of society. This article describes the design of the Models of Patient Engagement for Alzheimer's Disease project, an ongoing EU-funded public-private multinational initiative that will compare four innovative patient engagement strategies across five European countries regarding their ability to identify individuals with prodromal AD and mild AD dementia, which are “hidden” in their communities and traditionally not found in the typical memory clinic setting. The strategies include an online AD citizen science platform, an open house initiative at the memory clinics, and patient engagement at primary care and diabetologist clinics.",
author = "Octavio Rodr{\'i}guez-G{\'o}mez and Adri{\'a}n Rodrigo and Iradier, {F. tima} and Santos-Santos, {Miguel A.} and Hans Hundemer and Andreea Ciudin and Lena Sannemann and Marissa Zwan and Bridget Glaysher and Anders Wimo and Jaka Bonn and Gunilla Johansson and Isabel Rodriguez and Montse Alegret and Dianne Gove and Susana Pin{\'o} and Paloma Trigueros and Miia Kivipelto and Brandy Mathews and Antonio Ciudad and Daniel Ferreira and Christophe Bintener and Miren Gurruchaga and Eric Westman and Mark Belger and Sergi Valero and Peggy Maguire and David Krivec and Milica Kramberger and Rafael Sim{\'o} and Garro, {Inmaculada P. rez} and Visser, {Pieter Jelle} and Annette Dumas and Jean Georges and Frank Jessen and Bengt Winblad and Craig Shering and Neil Stewart and Laura Campo and Merc{\`e} Boada and {MOPEAD Consortium}",
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Rodríguez-Gómez, O, Rodrigo, A, Iradier, FT, Santos-Santos, MA, Hundemer, H, Ciudin, A, Sannemann, L, Zwan, M, Glaysher, B, Wimo, A, Bonn, J, Johansson, G, Rodriguez, I, Alegret, M, Gove, D, Pinó, S, Trigueros, P, Kivipelto, M, Mathews, B, Ciudad, A, Ferreira, D, Bintener, C, Gurruchaga, M, Westman, E, Belger, M, Valero, S, Maguire, P, Krivec, D, Kramberger, M, Simó, R, Garro, IPR, Visser, PJ, Dumas, A, Georges, J, Jessen, F, Winblad, B, Shering, C, Stewart, N, Campo, L, Boada, M & MOPEAD Consortium 2019, 'The MOPEAD project: Advancing patient engagement for the detection of “hidden” undiagnosed cases of Alzheimer's disease in the community' Alzheimer's and Dementia, vol. 15, no. 6, pp. 828-839. https://doi.org/10.1016/j.jalz.2019.02.003

The MOPEAD project: Advancing patient engagement for the detection of “hidden” undiagnosed cases of Alzheimer's disease in the community. / Rodríguez-Gómez, Octavio; Rodrigo, Adrián; Iradier, F. tima; Santos-Santos, Miguel A.; Hundemer, Hans; Ciudin, Andreea; Sannemann, Lena; Zwan, Marissa; Glaysher, Bridget; Wimo, Anders; Bonn, Jaka; Johansson, Gunilla; Rodriguez, Isabel; Alegret, Montse; Gove, Dianne; Pinó, Susana; Trigueros, Paloma; Kivipelto, Miia; Mathews, Brandy; Ciudad, Antonio; Ferreira, Daniel; Bintener, Christophe; Gurruchaga, Miren; Westman, Eric; Belger, Mark; Valero, Sergi; Maguire, Peggy; Krivec, David; Kramberger, Milica; Simó, Rafael; Garro, Inmaculada P. rez; Visser, Pieter Jelle; Dumas, Annette; Georges, Jean; Jessen, Frank; Winblad, Bengt; Shering, Craig; Stewart, Neil; Campo, Laura; Boada, Mercè; MOPEAD Consortium.

In: Alzheimer's and Dementia, Vol. 15, No. 6, 01.06.2019, p. 828-839.

Research output: Contribution to journalReview articleAcademicpeer-review

TY - JOUR

T1 - The MOPEAD project: Advancing patient engagement for the detection of “hidden” undiagnosed cases of Alzheimer's disease in the community

AU - Rodríguez-Gómez, Octavio

AU - Rodrigo, Adrián

AU - Iradier, F. tima

AU - Santos-Santos, Miguel A.

AU - Hundemer, Hans

AU - Ciudin, Andreea

AU - Sannemann, Lena

AU - Zwan, Marissa

AU - Glaysher, Bridget

AU - Wimo, Anders

AU - Bonn, Jaka

AU - Johansson, Gunilla

AU - Rodriguez, Isabel

AU - Alegret, Montse

AU - Gove, Dianne

AU - Pinó, Susana

AU - Trigueros, Paloma

AU - Kivipelto, Miia

AU - Mathews, Brandy

AU - Ciudad, Antonio

AU - Ferreira, Daniel

AU - Bintener, Christophe

AU - Gurruchaga, Miren

AU - Westman, Eric

AU - Belger, Mark

AU - Valero, Sergi

AU - Maguire, Peggy

AU - Krivec, David

AU - Kramberger, Milica

AU - Simó, Rafael

AU - Garro, Inmaculada P. rez

AU - Visser, Pieter Jelle

AU - Dumas, Annette

AU - Georges, Jean

AU - Jessen, Frank

AU - Winblad, Bengt

AU - Shering, Craig

AU - Stewart, Neil

AU - Campo, Laura

AU - Boada, Mercè

AU - MOPEAD Consortium

PY - 2019/6/1

Y1 - 2019/6/1

N2 - In most, if not all health systems, dementia is underdiagnosed, and when diagnosis occurs, it is typically at a relatively late stage in the disease process despite mounting evidence showing that a timely diagnosis would result in numerous benefits for patients, families, and society. Moving toward earlier diagnoses in Alzheimer's disease (AD) requires a conscientious and collective effort to implement a global strategy addressing the multiple causes hindering patient engagement at different levels of society. This article describes the design of the Models of Patient Engagement for Alzheimer's Disease project, an ongoing EU-funded public-private multinational initiative that will compare four innovative patient engagement strategies across five European countries regarding their ability to identify individuals with prodromal AD and mild AD dementia, which are “hidden” in their communities and traditionally not found in the typical memory clinic setting. The strategies include an online AD citizen science platform, an open house initiative at the memory clinics, and patient engagement at primary care and diabetologist clinics.

AB - In most, if not all health systems, dementia is underdiagnosed, and when diagnosis occurs, it is typically at a relatively late stage in the disease process despite mounting evidence showing that a timely diagnosis would result in numerous benefits for patients, families, and society. Moving toward earlier diagnoses in Alzheimer's disease (AD) requires a conscientious and collective effort to implement a global strategy addressing the multiple causes hindering patient engagement at different levels of society. This article describes the design of the Models of Patient Engagement for Alzheimer's Disease project, an ongoing EU-funded public-private multinational initiative that will compare four innovative patient engagement strategies across five European countries regarding their ability to identify individuals with prodromal AD and mild AD dementia, which are “hidden” in their communities and traditionally not found in the typical memory clinic setting. The strategies include an online AD citizen science platform, an open house initiative at the memory clinics, and patient engagement at primary care and diabetologist clinics.

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UR - https://www.ncbi.nlm.nih.gov/pubmed/31076376

U2 - 10.1016/j.jalz.2019.02.003

DO - 10.1016/j.jalz.2019.02.003

M3 - Review article

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EP - 839

JO - Alzheimers & Dementia

JF - Alzheimers & Dementia

SN - 1552-5260

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